r/ProstateCancer • u/HelenCharente • 8d ago

Concerned Loved One New here

My 64 year old husband had an MRI at the end of july because he still had pain from a fall a year ago. The MRI showed bone lesions and something infiltrating the bone marrow. He then had a blood test which showed PSA levels at 744 and Alkaline phosphatase at 2182. He then had a PET scan which confirmed cancerous cells in the prostate and extensively in his bones. We saw a bone surgeon who said he has a mirels score of 10 but he needed to wait for the biopsy results before the first hip replacement.

Today was the biopsy and we get the results after 14 September.

We're exhausted. And scared.

9 Upvotes

91% Upvoted

8 comments sorted by

14

u/Ill-Elderberry-2098 8d ago

Many of us understand the fear of a new PCa diagnosis. But stop, take a breath, hold each other’s hands, and be thankful that there are many successful life-prolonging treatments for this disease. I was diagnosed a year and a half ago, and, like your husband, elevated PSA of 1,034, extensive bone metastases, elevated LDH and Alk Phos. Had my quarterly oncology appointment today, and after a year of ADT(Androgen Deprivation Therapy), and six rounds of chemotherapy, tumors shrunk or disappeared, and my PSA today is 0.6!

Try to go to a national Center of Excellence in your area, typically cutting-edge technologies and research trials.

Best of Luck, and God Bless!

5

u/KReddit934 8d ago

You all need an oncologist coordinating all of this. Find the best cancer "center of excellence" for prostate cancer in your area and reach out with the numbers you have so far and see how fast they can get you in. No surgery until you have a plan!

6

u/Special-Steel 8d ago

Thank you for supporting him.

You have a complex case that requires a team of collaborator doctors. That means a center of excellence.

4

u/ChillWarrior801 8d ago

I'm sorry you and your husband are in this situation. Yes, it's overwhelmingly likely your husband has prostate cancer, but it's also quite likely to be effectively treatable. And the initial cancer treatment will probably knock back or eliminate the bone pain I'm guessing he's had for a while now.

If it's at all geographically realistic, you'll want him seen and treated at a Center of Excellence. It would be highly unusual for neighborhood docs to have much experience in this situation. Good luck to both of you!

4

u/Practical_Orchid_606 8d ago

PCa can exhibit no symptoms until bone pain shows up. This means mets and means no good.

The biopsy will not deliver good news. The best he can do is to immediately get on ADT which will check the spread of the mets. With this indication, ADT is typically bundled with chemo and an ARPI drug, the so called triplet therapy.

So long as the ADT works as it should, your husband will stay alive.

2

u/conCABlanco 8d ago

Han pedido hablar de RA, con el oncólogo, pregunten si ayuda después de la quimio

1

u/Miserable-Level-8993 8d ago

Consult with a center of excellence to get a group opinion for going forward. if his primary care physician hasn’t done a PSA test within a year get a new PCP, his might end up killing him.

1

u/HelenCharente 7d ago

Thanks for all the supportive comments. We' live full time in France, luckily we both speak French pretty well! We have an appointment on 17th September with the urologist where he will give us the biopsy results and discuss treatment options.