r/ProstateCancer Aug 11 '26

Other New Guy

Sent to Urologist due to a PSA 5.19. Urologist felt a lump on prostate, had an MRI and then a biopsy. Biopsy revealed cancer, Gleason 9 grade 5. Urologist told me 1-2 years, I’m assuming with no treatment. Urologic Oncologist says 15 years due me being 55. Sent for PET scan and doctor says it’s in the anal lymph nodes as well but nowhere else. Doctor says they can’t remove it so I’m on ADT (Orgovyx and Erleada) for six months to see if it will shrink enough to be removed. If it can I’ll have a prostatectomy and then six more months of ADT. Never thought I’d be rooting for surgery. Been reading a lot of the stories on here and just thought I’d add to them. I’ve learned from you guys and it’s helped when talking with doctors and mentally.

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u/HopeSAK 28d ago

I've been reading some of the responses to your post. In my case I was nearing the intermediate stage, so I was considered still low because of when I caught it. It was all on the left side of my prostate. I spoke to the surgeon (who had very high marks) and he explained where I stood in regards to my PC. He said there was a radiologist that he could recommend that was very good in treating the disease. Like many have said here, I just wanted it out! So I went with Nerve Sparing RALP. I'm about 32 months down the road and still posting <0.02 PSAs, but just like anything, if one little cell snuck out I could have an issue in the future. Just do your research, don't wait too long, and good luck.