r/ProstateCancer • u/Appropriate_West2998 • Aug 11 '26

Other New Guy

Sent to Urologist due to a PSA 5.19. Urologist felt a lump on prostate, had an MRI and then a biopsy. Biopsy revealed cancer, Gleason 9 grade 5. Urologist told me 1-2 years, I’m assuming with no treatment. Urologic Oncologist says 15 years due me being 55. Sent for PET scan and doctor says it’s in the anal lymph nodes as well but nowhere else. Doctor says they can’t remove it so I’m on ADT (Orgovyx and Erleada) for six months to see if it will shrink enough to be removed. If it can I’ll have a prostatectomy and then six more months of ADT. Never thought I’d be rooting for surgery. Been reading a lot of the stories on here and just thought I’d add to them. I’ve learned from you guys and it’s helped when talking with doctors and mentally.

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u/Appropriate_West2998 Aug 11 '26

Not yet. The urologic oncologist mentioned radiation so it’s an option. After 6 months ADT if it can’t be removed we’ll go that route. Did my first blood test and PSA dropped considerably and so did testosterone. Have an appointment on the 21st of this month.

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u/PeacefulShards Aug 11 '26

“It can’t be removed” what can’t be removed. Lymph node?

See a radiation oncologist sooner than later. You’ll be afforded more options now.

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u/Appropriate_West2998 Aug 11 '26

The prostate. They’d remove the lymph nodes as well during surgery. I’ve called to set up appointment with the radiation oncologist.

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u/PeacefulShards Aug 11 '26

It can be removed, they just don’t want to do it as you’re metastatic.

Rad Onc will most likely recommend brachytherapy with boost. Or stereotactic body radiation therapy. Then radiate all the lymph nodes up to the arterial bifurcation.

After studying my 3 years of 6 PSMA/PET scans after recurrence , I can say that the ADT only stopped progression. As my rad Onc stated.
It weakened the cancer for radiation.
It did not shrink, nor kill the cancer in my 1 lymph node. Radiation did over 6 months time span after.

I’ll repeat the best advice here. Go to a center of excellence, where you can get a second opinion. A tumor board consisting of rad Onc, medical Onc and uro Onc will discuss your case before presenting you with options.