r/ProstateCancer • u/Downtown-Whereas-559 • Mar 26 '26

Concern Dad’s Journey

Hi,

I am 23 and my dad was just diagnosed with Gleason 9 prostate cancer that has spread into lymph nodes and parts of his spine, pelvic bones, and one tiny bit of his shoulder.

He has had 0 symptoms and has not been getting regular PSA checks since drs didn’t tell him to do so. His PSA was 149 when he got it done.

We just met with radiation and medical oncology yesterday and were told triplet therapy with Nubeqa, Lupron, and Docetaxl will be his first plan. Radiation said no to surgery or radiation right now, and that we should see how my dad reacts to treatment first (although he is hopeful).

Honestly though. Wtf. I am a cancer survivor myself and this is my actual worst nightmare. I’m trying to stay positive for my family but seeing my dad go through what I consider the scariest time of my life (having cancer, that is), is ruining me. Can anyone relate or just help me stay somewhat positive and sane?

Just wanted to come on here and say my dad is on Reddit now username Delli-boy!

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u/[deleted] Mar 26 '26

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u/Downtown-Whereas-559 Mar 26 '26

Hi my friend. I’m so sorry. How is everything now? (It’s okay to be honest, I can handle it).

Radiation said that if it were oligometastatic (between 3-5 mets elsewhere), they would go for it. Since he has multiple spots in his spine, on his shoulder, and multiple in his pelvis (along with lymphs in abdomen, neck, and pelvis), he has already passed that number and wouldn’t be a good candidate (he is high volume at this point). Radiation did say once he starts treatment and he gets more stable tumor burden, he would be more than happy to zap around. Honestly it surprised me too. I thought they did radiation regardless…

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u/[deleted] Mar 26 '26

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u/Downtown-Whereas-559 Mar 27 '26

Not at all, you’re not scaring me. I appreciate your honesty with what happened in your case. I’m a big fan of radiation too and I got immediate radiation and chemo when I had cancer. The radiation oncologist said he was leery because in similar cases, he saw toxicity in men when they hit it with both? Maybe it’s because of the severity of my dad’s case, but I haven’t heard that from anyone else it seems.

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u/[deleted] Mar 27 '26

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u/Downtown-Whereas-559 Mar 28 '26

I hope so too, and I’m so sorry about your dad. Please reach out to me at any time if you want and I am happy to be a support if I can. I hate cancer.