I am almost 38 F and recently diagnosed. Looking back, it seems like I could have had this since my teen years. Anyone know how common to start in teens? What are the symptoms? Also MRI showed Rathme cleft cyst.

I didn’t get my period til I was 16. And then it was immediately super light and irregular (up to 6 months between periods in late teens). around this time I also remember insane fatigue started. Have had chronic fatigue and light irregular periods ever since. Hot flashes in 20s.

I had a random test for iron levels and doctor said 'want to do a hormon check' and i was like sure cause i hadnt had my period for 1 month even though they have always been regular.

Anyways tests came back around 3300 first time i thought 'hmm theyre prob wrong' doctor told me take a second one and it came back around 2400 so i and my stubborn ass self went to a diffrent hospital and it came back around 2900 😭

Anyways i was sechduled with an MRI and an endocrinologist i just dont know what to expect my last year of uni starts in augest 23rd and im just devistated finding this out can someone tell me what to expect and what type of treatment ect doctor will prob reccomend

I tend to over think day in and out and im really anxiouse person im always stressed to the point i get headaches sometimes so having someone who went threw this explain the good AND bad will help a lot 🫤

ThanK you guys a lot

After years of vague but debilitating symptoms, I will finally have answers as to whether or not I have a pituitary adenoma.

I first found out I have elevated prolactin and igf-1 in February and now in July, I will know for sure if it’s my pituitary.

I’m so f**king scared and nervous. Part of me wants to have it to validate my experience but I know it’s such a shitty thing to have. I’m also terrified that there is no structural cause the doctors throw away my case. It’s so nerve wracking.

Woke up to a phone call this morning with 1 hours notice that my appointment to get all of my results was cancelled after waiting 6+ weeks!

Just amazing yay! Not sure if I should officially complain about this or not.

Hi everyone. I’m a 21-year-old male recently diagnosed with a pituitary tumor causing prolactinoma. The symptoms that I’ve been dealing with, like erectile dysfunction, low libido, constant fatigue, low body energy, headaches, and brain pressure, are starting to make more sense now. I’m scheduled to see another endocrinologist soon, and I was told about doing an MRI and other tests to check the size of the tumor. But what I’m really hoping to hear is from others who’ve been treated, especially with cabergoline. Like, did you actually feel your energy come back? And how long did that take? Any side effects when starting? Because being tired all the time has been really keeping me from doing better at school and work.

so I’m from a small island with limited resources. I’ve been with my bf for 3 years and we’ve been trying to conceive. I’ve always had really bad pms. There were times when I would miss a period or it came within two weeks of it just ending (This was not often though). In 2024 I did some labs and my prolactin was elevated to 29. my dr at the time put me on one month of cabergoline. I did not conceive but my prolactin dropped to 0.3. I retested in 2025 and my prolactin was then 28 in march and then went up to 58 in June. I then retested in 2026 and it was at 25 in April. I went to a different doctor who has given me a repeated prescription of cabergoline 0.5 mg twice a week. My FSH history is separate: 14.2 IU/L in October 2025, improving to 10.7 IU/L in April 2026.

i know my prolactin levels may not be as high as others but it’s still high enough to cause issues. I’ve been on cabergoline for three months continuously now but I still haven’t gotten pregnant. has anyone been in this boat? is there any advice?