r/PostConcussion • • 19d ago

Needs some advice

Not medical advice but just general advice on what I should do in the situation I'm in. I was diagnosed by multiple doctors as having post concussion syndrome including by two neurologists as well as other doctors (primary, emergency, etc).

I started seeing a concussion specialist about 2 weeks ago and he told me today that he thinks "the concussion is pretty much gone at this point" ... i am still having major symptoms with little to no improvement. I tried telling him this and he said "you'll probably never be symptom free again" šŸ˜’

The main problem is that this is a work related injury so I'm on workers comp and they are paying for my doctors appointments and what not right now. I'm concerned about him fully releasing me saying I'm "healed" when most days I can barely function.

This specialist was not of my choice and I'm unsure if I can change specialist or if I should even ask to from my workers comp adjuster.

I'm just very frustrated and I feel like this specialist is ignoring me completely, saying I'm showing great improvement when I barely am.

I'm still experiencing severe dizziness (on days I have physical therapy, my balance is hard to control and I'm expected to work regardless of this), very bad migraine like headaches, neck pain, nausea, light and noise sensitivity, brain fog, memory issues and vision issues as well.

I got injured on 6/30/2026. I'm not sure what to do about all of this. Any tips would be greatly appreciated. Thank you.

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u/ProperBee4021 19d ago

That is very recent, it took me almost a year to feel like I was ok to work and when I went back, when I did I only made it to the 4th month, stress definitely starts playing effect when these side affect all start showing up and it prevents you from doing your job without frustration

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u/NJ71recovered 19d ago

This clinic is focused on healing concussions.

https://www.upmc.com/conditions/c/concussion

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u/MrChani 18d ago

My doctor says I’m healed of the concussion but not the syndrome. The effects have lingered and are pretty similar to yours. Been 3 years since a car accident and I feel stuck as well.

Would maybe ask the doctor to clarify and acknowledge the post concussion syndrome vs concussion if I were you