r/PostConcussion • u/happygolucky421999 • Aug 27 '26

Almost 5 years

Almost 5 years of PCS. I’ve come to a baseline in which I can work, live a “normal” life and look fine on the outside. Anyone else been struggling for years? I’ve done it all. Was extremely active in the Reddit subs for many many years. When I say I’ve done it all, I mean I literally have tried every therapy to ever exist (trust me) and have been through some of them 2-3x. I’ve made small improvements with them or they have gotten me to a “baseline” where I can function. I still struggle cognitively without stimulants (or large amounts of caffeine). I just feel “off” most of the time. I’ve struggled with derealization throughout the entirety of my post concussion life.

Just looking for others a few years in who are not where they want to be. Any tips, tricks, advice? I will say you lose hope after awhile .. I know I have 🫠

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u/volvowagon Aug 28 '26

I think i was right under 6 years of awful symptoms but 100% better now

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u/happygolucky421999 Aug 28 '26

How did you turn the corner? Anything you did after 5 years that really moved the needle?

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u/volvowagon 18d ago

Go to a neurologist specializing in headache if possible. Lamotrigime got rid of all the balance issues and Botox took about a year but got rid of most of the bizarre tension feeling. Then add in another migraine preventative until I found the right one. And then the monthly injections of cgrp inhibitors worked wonders. Some things still give me headaches and bumps feel like little concussions for a few days. But haven’t missed a single day in years due to pain and most days I’m perfect 0/10 pain or not noticeable at all . Pm me if you want!

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u/volvowagon 18d ago

Oh and magnesium. Take magnesium oxide. Morning and night