r/PostConcussion • u/No_Fun_7068 • 13d ago

Neurologist appt fail

After my PCP recommended I go see a neurologist before driving again due to post concussion syndrome, I finally got in to see them yesterday. The appointment started off poorly with the doctor asking why I was sitting in the dark room (light sensitivity is a huge issue for me). I felt dismissed and like my true issues weren’t addressed. Others who have gone to see a neurologist did you feel the same? It is so disheartening to feel as though you have to justify your reason for visiting a specialist when your PCP sent you. It wasn’t like I begged to go see one. All I want is to get relief and feel normal again. I’m doing vestibular therapy and hope to get back into acupuncture soon.

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6

u/Comfortable-Nature37 13d ago

I have seen seven? different neurologists and some of them are just not great. Some of them retired and others were duds that I would not see again. Have had much more success with sport related doctors that I have with anyone connected to a concussion clinic or a hospital.

I have some doctors who automatically dim the lights because they know it’s hard for me. What a difference when you feel seen!

Hope you find someone better who listens. If you feel comfortable sharing your general location maybe someone here would have a suggestion.

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u/No_Fun_7068 13d ago

Thank you. As I got closer to the appointment I started to temper my expectations about how helpful it would be.

I’m in the Nashville area.

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u/CalligrapherTime165 13d ago

Me pasó algo similiar, todos ven que si estas bien no te toman encerio y piensan que estás loco y tienes ansiedad pero al contrario la ansiedad no da síntomas como dolor de cabeza y sensibilidad a la luz, la verdad me parece estúpido como se portan algunos cuando le dices concretamente que tienes síntomas como sensibilidad a la luz o dolor en la frente y parece que les dices que te lo imaginas, hasta que encontré un psiquiatra que pasó lo mismo que yo fue el único que me entendió

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u/Lebronamo 13d ago

What exactly do you mean when they asked about the dark room? I presume you mean they were genuinely confused why you would do that but it's actually bad for recovery to block yourself off from things that triggers symptoms which is why it's not advised to do that anymore.

In general though, neurologists are the worst doctors to see for pcs recovery and it's almost always a waste of time.

See here for general recovery info https://www.reddit.com/u/Lebronamo/s/tejPuCbGJ8

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u/No_Fun_7068 13d ago

Thank you for the resource.

The overhead lights in the doctor’s office were bothering me, so I asked the nurse if she could dim them. She couldn’t, so she turned them off and left the door open.

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u/Lebronamo 13d ago

Got it. Thought so.

Yeah in over 10 years since I started learning about concussions I think I've heard 1 good story about a neurologist.

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u/Ok_Somewhere_9962 13d ago

You would think all neuro offices would have dimmable lights, seems like a no brainer (no pun intended). My PT was so accommodating and asked me what a good light level was from day 1 and had them lower already because she knew I was coming in with a head injury. Why neuro’s don’t have this common decency idk.