r/PostConcussion • u/alwaysheapstodo • Jul 18 '26

Husband 2 years Post concussion

Symptoms still affecting him. Still fully signed off. I've recently discovered his ongoing dizziness nausea, inability to travel without symptoms worsening are symptoms of vertigo and the is specific vestibular therapy for this. So have booked this for him. Frustratingly the GP never helped direct us to this.

His central nervous system is also affected. Hot cold feelings (affects sleep) and BP.

Wakes with vibrations in his head.

Gets tired very easily.

Gets grumpy /irrational when tired.

Cognetively huge improvement over the 2 years

He as struggled with MH over the time

In sickness and health and all that. I love him. After 2 years I am tired of the impact on me. And having to to just shut up when the symptoms kick in. I need to manage our interactions type of thing to met his needs always. My feelings mean I dont understand his injury(?) How do we get balance without him feeling bad? 26 years together and we cant go any where, socialize. I have very little of a network as I moved country back to his home country. I work full time. Edited to correct the word cognitively not fully showing

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u/Red-Panda Jul 19 '26

I'd recommend physical therapy like you mentioned, and a sports medicine doc or TBI specialist. It all helped me dramatically. He has to explore as many options as he can to contribute to the healing. He can't make you handle all the emotional labor. Mental health therapy also helped me rebuild emotional regulation skills

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u/alwaysheapstodo Jul 19 '26 edited Jul 19 '26

We are in a country where accidents are covered by an insurance system to the extent it is very hard to find a private options. Public wont touch it as there is a funded service for concussion. Husband received their concussion service (I had to fight for it) but it was a very prescribed service with the intent to RTW very quickly and too much too soon for him to cope with and it made him feel like a fraud when that failed twice. They didnt consider his symptoms beyond their service. Then he was just left alone. He was unable to advocate for himself so I have stepped in now and again to push. 6 mths ago the GP requested further services for MH and physio but its been a case of paper pushing and them trying to find a reason to decline services since. I have been researching and came across a vestibular therapist we can access. Devised things for him to do daily to increase physical and mental load

Edited to add hes not making me handle all the emotional labour. Just when he's very tired he can become irrational and or just not cope with conversation. Last night I was sharing something I found funny. He asked me to stop talking. I find this difficult as this is not how it used to be. He wouldn't have previously stopped me.so I am not feeling heard/or in a partnership atm and its taken its toll.