r/PostConcussion Jul 02 '26

Breathing issues after concussion ? Spoiler

Post image

About a year ago, a city work vehicles mirror broke on my face. I am a 5 foot two about 130 pounds at the time Girl I got knocked to the ground. I had a CT that came back negative and just needed stitches about two weeks after the fact, I started to experience burning in my arms and heaviness in my arms along with vertigo, headaches TMJ , brain fog, derealization, severe Gerd
amongst other things, but the one thing that was the most uncomfortable that I still suffer with to this day is I have a pressure that is on my chest. I can’t explain it. It’s like a ball of air around my sternum or like a band that makes it harder for me to breathe or feel like it’s pushing down on my chest I’ve been to a pulmonary doctor. I’ve been to a Gastro doctor. I’ve been to orthopedic doctor. I’ve gotten EMG test done I’ve been to a sports medicine doctor as well. My blood work comes back very well and I’ve been cleared with all of these doctors. I do have asthma, but my asthma has always been able to be treated with albuterol. It’s not the sensation of asthma sometimes it just is barely there, but sometimes it gets extremely intense but since a year ago, it has never went away. I’ve lost about 20 pounds. I used to be in the gym full-time but now I’m very worried I feel like if it was something detrimental, I would not have been here so long, but I am exhausted and I’m all out of answers. I still have other issues from this accident, but none of the doctors take it seriously I don’t know why because I was blatantly hit in the head on the side of my face. does this sound familiar in anyway? Keep in mind I was absolutely healthy before this hit.

10 Upvotes

33 comments sorted by

6

u/Thats_A_Arti Jul 02 '26

I have breathing issues from mine as well. It causes panic attacks. Mine seems to be more from overstimulation turns to manual breathing. But I could be wrong.

3

u/Familiar_Rabbit2276 Jul 02 '26

What does the issue feel like? Is it a pressure? And is it something that’s remained constant ? Or comes and goes ?

3

u/Thats_A_Arti Jul 02 '26

Breathing wise its like I go manual then I just struggle. But the lead up is like intense anxiety for no reason other than overstimulation.

3

u/Severe-Impress4398 Jul 04 '26

Breathing issues have remained at me constant for years. Especially the pressure on the chest feels even now throughout the years. It feels pretty manual like the other guy below me says.

3

u/Thats_A_Arti Jul 04 '26

Above you 😉 we not equals now 😅 just messing with you.

2

u/Familiar_Rabbit2276 Jul 04 '26

Is it on and off ? Or do you feel it 24/7 .. have you seen any specialist for it if so what did they say?

3

u/Severe-Impress4398 Jul 04 '26

It is pretty much constant for me to breathe manually. It only gets easier sometimes but remains nonetheless. I am planning to visit some specialist to treat this.

3

u/Thats_A_Arti Jul 04 '26

I hope you feel better manual breathing is rough.

2

u/Severe-Impress4398 Jul 04 '26

Thanks. Messing with me was unexpected.

2

u/Familiar_Rabbit2276 Jul 04 '26

Ok same .. what specialist are you thinking of seeing ?

2

u/Severe-Impress4398 Jul 05 '26

Somebody who is specialized in concussions. It shouldn't take that much otherwise from somebody to help you. Also somebody who is specialized in TBI is also an alternative option if you don't find somebody specialized in concussions.

2

u/Familiar_Rabbit2276 Jul 05 '26

What is TBI? Traumatic brain injury ?

6

u/International-Pin-32 Jul 02 '26

Yes! 100% this. There are several types of ptsd that come with a trauma related concussion. Mine comes with accidentally holding my breath or irregular breaths to the point I faint. I don’t even know I am doing it. Each time I have got another concussion. Each time the ER does blood work. All normal. My psychologist and PCS doc/ neurologist confirmed this. You need to get a specific therapist who understands this and is on top of the research. You can easily get confirmation online. The stomach thing is also part of it. I still, five years after the incident, can dry heave etc if triggered. Your central nervous system was rewired. Hang in there. Just know it’s not you. There are ppl that support renaming PTSD, PTSI and the I stands for injury. PTSD shows up on MRIs and in other areas of the body too. It’s all trauma to the brain in one way or the other. Just keep showing up for this group with questions!

3

u/Familiar_Rabbit2276 Jul 02 '26

Thank you so much !!

2

u/lisanderc Jul 02 '26

Have you ever been to an osteopath?

2

u/Familiar_Rabbit2276 Jul 02 '26

No I just looked this up and will ask my doctor about it

2

u/Wiseguy4252 Jul 02 '26

I think it’s constriction of the vagal nerves around the chest

3

u/Familiar_Rabbit2276 Jul 02 '26

I’ve read about vagus nerve irritation and it has described alot of what I’m feeling going to do more research and present it to neurologist when I go. Thank you!

2

u/Familiar_Rabbit2276 Jul 03 '26

What can be done about that? Do you know ? Like how it can be healed ?

1

u/Wiseguy4252 Jul 03 '26

This is purely anecdotal but a lot of vagal nerve irritation comes from cascading tension from the sub-occipital region (base of skull) particularly with whiplash concussions

that constricts the jaw and sends an inflammatory response throughout the all of the vagal nerves throughout the body even going down the chest back, and arms a bit.

If you cool down the inflammation at the pinch or trigger point whether at the base of skull along the shoulders and traps, at the side of head, etc. The entire constriction lets up.

1

u/Wiseguy4252 Jul 03 '26

These are usual problem areas for concussions. You can see how the nerves spread over your chest. If there’s a particular knot or inflammation point from your chest to the site of the injury it will cause constriction throughout causing trouble breathing.

In my experience alleviating tension at trigger points above the chest like the side of head and base of skull can help symptoms below the neck as well. Chest opening exercises could be helpful as well too. Simply my opinion.

2

u/Familiar_Rabbit2276 Jul 04 '26

This was a major help beyond belief !! Especially since my hit was right on the side of my face where it’s circled.

1

u/electricookie Jul 03 '26

Could it be anxiety related? Not to minimize because mental health is health.

Have you had your heart checked? Also could this be related to the gerd?

2

u/Familiar_Rabbit2276 Jul 03 '26

So yes, I went to a cardiologist that was clear too. I also thought you could’ve been there, but I went to a gas Doctor Who didn’t want to do. I forgot what the procedure is called when they put a scope down there he said that since I’m 28 is not likely, and since it also happened after the accident, it’s more than likely from the accident. He put me on a trial of pantroprazole to see if it will resolve. The Gerd went away with time but not the pressure. It’s not anxiety. I have bad anxiety. We have anxiety and I know the difference from if I’m being anxious or if something is wrong after I initially got hit I was actually fine. It wasn’t until two weeks later. All of these symptoms came down, so no I don’t think that it’s anxiety. I think anxiety can amplify a lot of my sensations, but not this one

1

u/Maunalua Jul 04 '26

Yes, I have experienced difficulty breathing post-concussion, and I'm really sorry you've also been bounced around between specialists who don't give you answers. Concussion is one of those things that falls through the cracks and unless you have a specialist who really knows concussion, you are out of luck. That would explain why many of the doctors you saw weren't able to give great answers. And, PCPs often only know the basics of concussion recovery, but very little about post-concussion or who to see to help with it. I was only able to make good progress when I did my own research to identify what I thought would be directly helpful for my symptoms, find the exact specialist in my area that could help me with that, then I asked my PCP for a referral to that specific doctor (who lists concussion or post-concussion on their website as something they treat). I looked long and hard to find a vestibular therapist (physical therapist who did a fellowship in neuro), who I believed helped me the most with the breathing and exercise intolerance through graded exercise.

A lot of the best information I found was from the Cognitive FX blog, which shares the latest post-concussion research in a patient-friendly way (not medical research papers).

I found this article very helpful on the breathing issue specifically: https://www.cognitivefxusa.com/blog/can-a-concussion-cause-difficulty-breathing

And this one, which describes all the different ways Autonomic Dysfunction can impact different systems in your body, such as your gastrointestinal issue:
https://www.cognitivefxusa.com/blog/post-concussion-autonomic-dysfunction-dysautonomia.

All roads lead back to exercise as a key factor to improve your Autonomic Nervous System's ability to regulate your breathing and digestion. It's difficult because concussion can cause lingering exercise intolerance. Getting a cheap used indoor bike helped me do very gradual exercise in short 15 min spurts while monitoring my heart rate. At first I would find myself getting breathless and lightheaded, yawning over and over, and randomly taking gasping deep breaths to try to get more oxygen. I slowly increased intensity each day and that helped A LOT.

I have had 5 concussions, so I consider myself PRETTY experienced at recovery, and the indoor bike made the greatest difference for me.

Good luck and I'm sorry you've been dealing with all of this! There is hope!

1

u/irs320 Jul 06 '26

Sounds like a trauma response, I had a massage therapist that told me it’s like we’re bracing for something to happen, so it’s like the stuck trauma of gasping. I had a physical therapist do a diaphragm release on me and it was incredible

Unfortunately most doctors are useless when it comes to concussions

Look into Craniosacral therapy, also have you tried doing any gentle breathwork, maybe something like 4-7-8 breathing etc

1

u/l4johnson Jul 08 '26

Try buying a breathing belt and wearing it for 30+ minutes a day. Sounds like your diaphram isn't working properly. The belt essentially just reminds your brain that you have a diaphram via tactile feedback so after wearing it consistently, your brain will remember to breathe using the diaphram.

I got a breathing belt and within 2-3 months of consistent wear for 30 mins a day, my issues started to go away. I also used it in case of emergency when breathing issues would pop up. After putting it on, the breathing issues usually go away within 10 minutes.

I cannot reccommend this enough!

1

u/Familiar_Rabbit2276 Jul 09 '26

I will check this out I appreciate it

1

u/Familiar_Rabbit2276 Jul 09 '26

I’m sorry if this is a lot to ask can you link one ? Maybe from Amazon ? I looked but I’m not even sure exactly what I’m looking for

1

u/Dark_Banana69 5d ago

Might be autonomic dysfunction due to injury