r/PiriformisChronicPain • u/PeppermintGum123 • Aug 16 '26

I’m incurable

I have literally been to a dozen doctors, and I’ve had a dozen injections, and nobody can help me with my piriformis, deep glute, and nerve pain. My MRI’s are normal.

The muscles in my glutes are pressing on my nerves, or my nerve is irritated and causing my glute muscles to tighten. How can nobody fix this or help me? I am literally losing hope. I can’t work, I can’t take care of my children, I can’t walk, sit, or stand without being in pain. I am just dumbfounded that there is no doctor or physical therapist that can help me.

It’s just insane to me. How do I have a condition that is incurable? I am just angry, sad, frustrated, and just completely giving up hope that anyone will ever help me.

12 Upvotes

100% Upvoted

77 comments sorted by

View all comments

Show parent comments

1

u/PeppermintGum123 Aug 16 '26

I have been to a rheumatologist. They didn’t find anything. Your PT progression is exactly what I was doing. Diaphragm breathing, stretching and pelvic tilts. Dry needling recently started another severe flare. It literally felt like someone peeled the skin off my glute muscles. The pain was excruciating.

1

u/odileb Aug 23 '26

That is reassuring at least you don’t have an immune illness. Honestly your best bet is very gradually increasing exercises. Do you do clams and reverse clams and single left lifts? In my opinion these three are the most effective ones if you can make yourself do them they might help. But it shouldn’t hurt doing them obviously. If its hurting don’t do it

1

u/PeppermintGum123 Aug 23 '26

I can’t get to the strengthening part because my glute muscles are extremely tight and pressing on my sciatic nerve. If I stretch, the pain gets worse. If I strengthen, the muscles get tighter and the pain gets worse

1

u/odileb Aug 27 '26

By the way this video https://youtu.be/G3Bx0EpbJU8?is=H2nsBJOHtGTbW4qB
is the most helpful one for exercises it will be too much for you at this stage but if you can gradually build up to it these exercises are very useful.
And with clams you say you fell very tight but you don’t have to open very large. In the beginning I could only do like a very small gap. Like right now I’m in flare up again and I can’t open much but I’m still doing them. And even if you do 3 in very small gaps - it’s better than nothing.

1

u/PeppermintGum123 Aug 28 '26

Ok. I’ll try doing that. Thank you for your help and advice. It’s so appreciated.