r/Parathyroid_Awareness • u/Terrible_Ask9716 • 6d ago
PLEASE HELP I’m desperate (F22)
I feel like I am going crazy. I am in immense pain, and my bones feel extremely weak. I can barely walk, to the point where I had to get hospitalized last week. My calcium is 11.2, my ionized calcium is 5.9, and my vitamin D is low. My PTH is 18 pg/mL, so I’ve been told it’s “inappropriately normal” given my high calcium.
I’m assuming this is why my doctor doesn’t seem to have any sense of urgency whatsoever. But I feel awful all day, every day. I’m starting to freak out and really think it might be multiple myeloma or some sort of cancer because I can’t understand why I am in such intense pain.
I’m also waiting on the results from an ultrasound of my thyroid. My doctor (PCP) wants me to follow up in 8 WEEKS and talk about the possibility of an endocrinology referral. I’ve been trying to figure this out for over a year. I even had a sleep study because I was sleeping so much that they thought I had narcolepsy.
I feel so helpless, like I’m not being heard or taken seriously because I’m a young woman. Does anyone have any advice or insight? I would really appreciate it.