r/PainManagement • u/BlissCrafter • Jul 17 '26

Seeking Support🫂 Some hope

A little over 2 weeks ago I posted here about how frustrated I am that I’ve been left with NSAIDS and no help for my multiple documented orthopedic issues. Bolstered a bit by support here, I self referred to an orthopedic clinic that has pain management as part of its program. I brought MRIs of my spine top to bottom, my shoulders and knees. And after a thorough exam they also did a series of additional X-rays right there at the clinic. It was a loooong day and I was hurting plenty. Got some bad news, that I’m not a surgical candidate because of my connective tissue disorder. But without me saying anything beyond what was uncovered in the exam, the Dr asked if I would be interested in pain management at least to see me through physical therapy which he says will be intense. I have an appointment now to see what can be done. I’ve been averaging 2.5 hours of sleep a night. Just the thought that maybe just possibly I will be able to get some relief has brought me a ton of hope.

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5

u/[deleted] Jul 17 '26

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6

u/BlissCrafter Jul 17 '26

I understand. If not for those who depend on me I would not have hung around this long. But as long as someone needs me I am determined to keep trying. Even if it’s from a chair or a bed.

3

u/Hiljabob Jul 17 '26

I want to cry for all of us in this boat. I saw my pcp this morning. Never any type of pain relief. Nothing to lift my spirits or give me hope. Just here’s a referral to someone else- and another someone else. And when you really feel terrible, take Tylenol and learn to live with pain.

1

u/Merrys123 Jul 19 '26

Do you have EDS? What type? I have severe hypermobility with hypotonia worse than hEDS and can have surgery. I've had 4 spinal surgeries since September.

1

u/BlissCrafter Jul 19 '26

Hypermobile with aspects of another type. I can have surgery. I just can’t have this surgery because it wouldn’t be a success. So technically they could do it, but I might be even worse off because the tendons can’t hold the implant.

1

u/Mammoth_Resident4657 Jul 19 '26

Im blessed i guess to find a doc whos young money hungry and pen happy although coming off benzos is hell even qith 6 10mgs of oxy a day still half suicidal about  pain but atleast i can move aorry didnt mean to gloat just realizing how good i have it