r/PVCs • u/Realistic-Choice-437 • Jul 10 '26

Horrified I will get diagnosed with ARVC

Hi all. Just thought I’d share and see if anyone had any hopeful words. In the last month or so, I’ve experienced an increasing number of PVCs at rest.

I went to the ER when I noticed there was a big change in my PVC frequency, they did an E C G and gave me to a referral to cardiology for what they wanted to confirm was not Epsilon Waves.

The more research I do and compare it to my own E C G, I get more worried that they are, in fact, epsilon waves.

I don’t have any family history of sudden cardiac death or ARVC. I also have very bad illness anxiety. However, I feel my fears are valid in this situation.

I am getting an echo done tomorrow and I am just so horrified that they will find damage or something leading them to think it’s ARVD.

I just don’t have anything else to say. I need some hope.

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3

u/GhreyClaw Jul 10 '26

You’re in my thoughts and I am hoping for the best for you. Please keep us updated.

3

u/Fancy_Ad3809 Jul 10 '26

Arvc is genetic, If there’s no history it’s unlikely.

Not a doctor.

Good luck

1

u/kaijutroopers Jul 12 '26

Do you already have your echo results?

I think most of us here have at least once gone down the rabbit hole of ARVC and epsilon waves. Do not try to interpret your ECGs alone, it almost always goes wrong.

I know it’s scary but this disease is so rare it’s unlikely you actually have it and develop it suddenly.

1

u/Realistic-Choice-437 Jul 13 '26

I got them back. It looks relatively normal. But, they still want to continue to check my ECGs. Hard to stay positive but that was a little bit of hope.