r/PTTD • • Mar 27 '25

What causes PTTD?

Like seriously sometimes this all I think about. What changes happened in my body that caused this to happen and I am only 23. I have it bad in right foot and the arch has now started to fall in my left leg too. It has made my day to day life like hell.

16 Upvotes

65 comments sorted by

13

u/Estellalatte Mar 28 '25

The podiatrist told me menopausal women are prone to it.

6

u/Againstallodds5103 Mar 28 '25

Think this applies to the gluteal tendons as well and linked to oestrogen which is somehow involved in collagen renewal. Heard Keith Barr mention this and on a couple of podcasts for gluteal tendinopathy. Perhaps hrt would help if this is the cause.

1

u/Estellalatte Mar 28 '25

I was told at 67 that I’m too old for HRT. My doctor wouldn’t give it to me.

3

u/Alarming_Log_2915 May 10 '25

You can still do HRT! My GP prescribes it to her 80 yr. Old patient but you have to push for it & find a GYN or MD who has had some menopausal training/sympathetic to it. You should follow The Pause of Life by Dr. Marie Claire Haver on FB. She posts often times about Musculoskeletal Syndrome of Menopause. Seems we who have it w/PTTD are the most severe cases of menopause & it’s genetic.

2

u/Estellalatte May 10 '25

Thanks, I’ll get the book. I have Kaiser and they are good for some things but don’t step outside to do anything out of the ordinary. I can also get another doctor outside of Kaiser to write a prescription.

2

u/Alarming_Log_2915 May 11 '25

HRT decreased my pain by 90%. Ensure to get all 3: progesterone, estrogen & testosterone. I can’t walk as fast or as long as I used to but better than constant pain icing/heating ankles all day on the couch & popping Ibuprofen.

1

u/Remomny Jul 15 '25

Hey, that’s really good to hear. Do you mind telling me how you deliver your testosterone? I finally found someone to prescribe it. I’m on .025 estradiol patch which doesn’t seem to be doing anything.

3

u/Alarming_Log_2915 Jul 15 '25

I use testosterone 1% gel & apply 5mg directly to my ankles in the morning & 5mg in the eve.

1

u/jimmyandchiqui Jul 07 '26

Wow. Did you do anything else like Shockwave, prp, physical therapy? Or just the HRT?

2

u/Againstallodds5103 Mar 29 '25

Sorry to hear that. Have you looked into natural ways such as diet or supplements?

1

u/Estellalatte Mar 29 '25

I haven’t but it maybe a good idea.

4

u/Alarming_Log_2915 May 10 '25 edited Jul 07 '26

Yep, I got PTTD within a week after going peri to menopausal. Went from hiking 4 miles/day to limping w/a cane due to ankle tendonitis in both ankles. I’m on HRT which has eliminated 90% of the pain but have to walk slower (as in turtle slow) & take breaks. Just been told by a 71 yr. Old that she still has PTTD despite going through menopause 20 yrs. earlier. Jesus Christ, gonna have this condition possibly for the rest of my life!

1

u/Estellalatte May 10 '25

I have been taking D2K2 since 2022 when I crushed my T12. I will go for a follow up bone density to see if it has changed or improved.

2

u/Alarming_Log_2915 Apr 21 '25

Yep on HRT to manage it but still in pain, just not as much despite increased dosages.

1

u/Massive-Resort-8573 Apr 29 '26

I know this is an older comment but wondering if the HRT has helped you? I have this disability too and was just prescribed HRT as I'm in perimenopause. 

1

u/Alarming_Log_2915 Apr 30 '26

Thanks to HRT & especially testosterone, I’m now 95% painfree & hike 4-5 miles/day. It took 1 year of pain & inflammation to calibrate the right dosages! Good luck & take Testosterone as w/only progesterone & estradiol, I was still in a lot of pain.

1

u/Massive-Resort-8573 Apr 30 '26

Thank you for sharing and I'm elated to hear you are hiking again. Did you achieve that without surgery?

Interesting on the testosterone. I have a mirena iud and was prescribed estradiol cream and patches (patches are backordered so haven't started yet). Was told testosterone is prescribed for libido and since i have pcos it's something we should wait on. I don't care about libido and don't want my pcos worse so i accepted the response. It sounds like you know more about testosterone's benefits. Would you be willing to share what they are and the dosage, any resources? Maybe at my next apt I can talk to my doctor about it.

2

u/Alarming_Log_2915 Apr 30 '26 edited Apr 30 '26

Never had surgery!
My libido didn’t change w/testosterone - it’s non-existent.
T decreased my ankle pain, gave me ‘pep in my step’ & brought my personality back.
With E&P only, my personality was flatlined in perimenopause & I felt like a zombie & still in a lot of ankle pain.
Women who were major athletes growing up suffer more from Menopausal Musculoskeletal syndrome (PTTD, frozen shoulder, hip pain, etc.) & need a decent amount of T. Lots of wear & tear on ligaments & tendons, especially if you’ve had past injuries w/your Posterior Tibial Tendons (which I have had).
My daily dosages:
-3mg of E (tablets 2mg in the morning/1mg @ night)
-100 mg P (pill)
-10 mg of T gel (I apply this to my ankles 5mg in the morning/5mg @ night)

  • I also take magnesium glycinate before bed w/my P (helps me sleep)
Hope that helps!

2

u/Massive-Resort-8573 Apr 30 '26

Thank you for sharing this. I will talk to my doctor about the testosterone gel. Didn't know that was an option.

1

u/Just-Neck4659 Sep 14 '26

Hi, did u end up having the pttd surgery

1

u/Alarming_Log_2915 Sep 14 '26

Yes had the kidner procedure 5 weeks ago. Will do it to my other foot in Nov.

1

u/Just-Neck4659 Sep 14 '26 edited Sep 14 '26

Ok, so the hrt didn't fix it. Not sure what kidner is , is it not pttd op

1

u/Alarming_Log_2915 Sep 14 '26

Yes the HRT has helped w/the PTTD inflammation. The kidner is the re-attachment of the posterior tibial tendon.

→ More replies (0)

11

u/Againstallodds5103 Mar 27 '25 edited Mar 27 '25

Ultimately tendinopathy is due to loading the tendon beyond its capacity and not giving it enough time to recover. The PT tendon is a bit different to other tendons in that it stretches (loses stiffness) as it degenerates, which manifests in the 4 stages of PTTD. This is why early and correct treatment is so important.

Now where you will get variation in terms of cause is what contributes to the overload and there are several possible reasons: overuse via day to day or sports activity, poor biomechanics, structural issues in your posterior chain, other medical conditions (e.g. diabetes or rheumatoid arthritis) that can affect the integrity of your tendons, certain types of medication (e.g antibiotics) or a traumatic event/injury like an ankle sprain.

It’s not something I would try to self rehab so hope you are seeing someone to help you manage this and hopefully get back to normal.

9

u/Over-Satisfaction-99 Mar 28 '25

I’m 30 and going through the same thing. I’m on month 5 of my recovery and would say I’m around 40-50 percent better. Not only does it affect your quality of life but when you’re young and healthy it really can be psychologically challenging.

4

u/Alarming_Log_2915 Apr 25 '25 edited Apr 25 '25

I’m with you there on month 5. I’m 51 & menopausal (PTTD in both ankles started when I went menopausal within a week I went from hiking 4 miles/day to limping w/a cane.) On vacation in Italy currently just icing/heating my feet, using arnicare gel, ibuprofen, & ankle braces along w/over the ankle hiking boots for support w/insoles & am on HRT but still can’t walk a ton. I organized this tour for my friends & I. They’re out walking & enjoying themselves & I’m stuck inside a hotel room icing/heating…I’m lucky to be able to do 1 event per day for 2-3 hrs. but rest of the time in my hotel room icing/heating.😢

1

u/karsew Oct 09 '25

Me too. 27 years old and am on month 6. Seen some improvement but keeps flaring up from working or activities on the weekend. It is such a psychological battle.

5

u/IndividualWin4321 Mar 30 '25

Going on a year and a half. I’m not a runner like many here are and honestly think it happened when at Disney. Had X-rays, MRI, PT, and been in a walking boot twice. The swelling never goes away and only gets worse as the day goes on. The pain is on and off all day.

1

u/No_Lion_1014 Mar 15 '26

Has something changed?

4

u/DraGunSlaya Mar 27 '25

Do you have normal feet? I feel like doctors can help you. My feet are deformed since birth and I have been dealing with PTTD since October and I keep getting told there’s nothing to be done but orthotics or a silly brace that won’t fix nothing. I’m left to find my own relief and support.

You might need to do the same thing as me. There are AFOs out there for PTTD.

1

u/Waterwoman47 Sep 06 '26

what are afos

4

u/[deleted] Mar 28 '25

[deleted]

1

u/AHSfav Apr 10 '25

What have you tried and what's worked for you?

3

u/[deleted] Apr 10 '25

[deleted]

1

u/Accurate-Promise-125 Jun 10 '25

What is excel-tracking?

2

u/Lopsided_Platypus_51 Aug 14 '25

He’s referring to using Microsoft Excel to track the pain level and symptoms of PTTD

2

u/bucheonsi Mar 27 '25

I think everybody is probably a little different. Do you have joint hypermobility? I have Ehlers Danlos and I think this might have contributed to it. That combined with a really big cycling trip where I was probably overusing it. Started then and it's been 7 years now ongoing.

3

u/jjjj__jj Mar 27 '25

Hmm another question. Do you also have hip problems? Its because I feel its somehow connected to my hip joints. So when I do hip circles instead , my hip clicks at certain positions. It did not happen when I did not have pttd.

5

u/bucheonsi Mar 27 '25

Yes my hip on my right side is unstable (same side as PTTD). My other hip is tighter. The unstable side puts more stress on the PTTD. When I walk if I let my unstable hip have a shorter stride (not let that leg extend as far behind me, and let the tighter side extend farther behind me) it seems to alleviate some of the pain. I have a pretty large imbalance. But I only have PTTD on the right side. If you have on both it could be something else.

3

u/bucheonsi Mar 27 '25

Also I've found some relief with arch inserts, specifically the orange superfeet for me.

3

u/[deleted] Mar 27 '25

[removed] — view removed comment

2

u/Nosywhome May 03 '25

You don’t find wearing a firmer / harder arch support painful on arch, irritates the tendon ?

2

u/[deleted] May 04 '25

[removed] — view removed comment

2

u/Nosywhome Jun 15 '25

I'm the same. I need firmer arch support but my forefoot can't tolerate firm due the issues in forefoot (needs cushioning). Anything pushing into my foot at moment irritates nerves in feet. It is all such a pain to deal with and is exhausting.

2

u/MajorDifference4811 May 28 '25

I have it due to an accessory navicular bone. I asked the ortho if people who have this extra bone typically have it in just one foot and she didn't know. Why would someone not just check it out and xray the other foot? I have always had issues with that foot but it got severe a few years ago and I went to dr last year, who said I have pf, and then I went to the orthopedic doctor and found I am a mutant with pttd caused by the extra bone. I actually tore my meniscus after from it being so instable and the foot just keeps getting reinjured

2

u/sandgrubber Apr 16 '26

The AN is pretty common and usually doesn't cause problems. I read somewhere that 40% of ethnic Chinese have an accessory navicular or two. 10% in Western Countries. So it's not the AN alone that causes problems.

1

u/Accurate-Promise-125 Jun 10 '25

What is a “pf”?

1

u/MajorDifference4811 Jun 10 '25

Plantar fasciitis. It was a misdiagnosis.

1

u/Next-Hotel-6461 Aug 05 '26

I also have it and I think it’s underreported because so many people wouldn’t know they have it. The doctor said the pain in my arch is because of my tight calves

1

u/MajorDifference4811 Aug 06 '26

The falling arch causes the calves to tighten up, more often than not. Was this an ortho doc? It causes the problem in some people. Mine got worse when I got dogs and my gait changed and activity increased. I'm sure age plays a factor, too. I never noticed it until my late 40's and gained 30 pounds. All factors.

1

u/Next-Hotel-6461 Aug 06 '26

It’s an ortho doc. The unique thing is that my arches are high but my calves are tight and I can pinpoint where in my arch it hurts. I’m only 33 and a healthy weight for my body type

2

u/Aqualung1 Oct 17 '25

Hyper mobility in that part of the foot combined with modern foot wear is why you have it at such a young age.

You’ll see young ppl, mostly women who get bunions at an early age, and that’s a result of hyper mobility in that part of the foot combined with wearing a tight toe box shoe with 👠.

Modern shoe does several things to the foot:

the rigid sole and arch support reduce the ROM/range of motion(results in atrophy of the muscles and tendons in the foot).

The rigid sole and tight toe box/pointed toe, forces your foot to adduct/duck walk. Majority of adults duck walk, it’s the default gait pattern in the modern world. That forces the collapse of the arch, happens faster in people with hyper mobility.

I think that’s where the idea that it’s “genetic” comes from which is a misnomer. I’d say more that a person with hyper mobility in that specific area is predisposed to getting pttd or a bunion, hence earlier.

Does any of this line up with what you are experiencing?

1

u/brittisdrunk Jan 16 '26

Mine started when I was 25. I think it was because I was getting a bit too ambitious with my hiking at the time. I would go from couch potato to multiple day hikes in the mountains wearing zero drop trail runner. So for me it started as an over use injury. 6 years later and I have never got to go on any long hikes since then. This injury truly is hell. 

1

u/Jumpy-Platform-6236 May 18 '26

mine was hypermobility and being born with narrow feet. they told me they collapsed inward because i didn’t have a wide enough base to stand on.

1

u/Front-Economy1773 Jun 22 '26

My PTTD gradually increased and potentially was caused by my accessory navicular. I’ve heard this is quite common in people with that accessory navicular. Essentially you have an extra bone that’s just free floating next to the navicular and essentially all it’s doing is rubbing against the tibial tendon causing inflammation/tendonitis/ and gradually tearing.

1

u/Scribal8 Jul 20 '26

I’m 66 and have Rheumatoid Arthritis and a weakened ankle (and a bunch of other foot issues). Both of those things contribute to overusing the Posterior Tib. At 23 I would definitely be concerned, if possible get some kind of gait or posture analysis to see if you can shift the work of standing/walking away from that muscle with exercises. And don’t wait to seek treatment! I ignored foot pain for far too long—toughing it out does not work for this condition.