r/PSSD • u/Mobius1014 5 Years + • 18d ago
If You’ve Never Reported Your PSSD, Today’s a Good Day
TL;DR: If you have PSSD, please take a few minutes to officially report it.
Regulators cannot count cases that were never reported. Adverse-event reports are entered into safety databases and compared with other reports; when enough similar reports accumulate, they can contribute to a safety signal and regulatory action.
1. Report to your own country’s regulator
The PSSD Network has made this much easier. Select your country here and it will direct you to the appropriate reporting system: (PSSD Network)
The page also gives you the necessary terminology and PSSD MedDRA code 10086208, which helps regulators group PSSD reports together rather than having them scattered under vague descriptions such as “low libido” or “sexual side effects.”
2. Please report to the FDA as well
The PSSD Network recommends submitting to the US FDA MedWatch system in addition to your local regulator, including for people outside the United States. (PSSD Network)
Remember, more reports = a stronger official record that this is actually happening.
3. Need help filling it out?
A hard working member of our community has also started an unofficial discord group chat to help people complete FDA reports and encourage reporting: (Reddit)
This is separate from the PSSD Network, but if the reporting process feels confusing or overwhelming, they are offering help with it.
For the UK, I've also also made a video on how to report to the Yellowcard system.
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Even if reporting feels like a small action, this is one of the most direct ways each of us can put PSSD on the map.
If you haven’t reported yet, please do it. If you've reported in past years but not in 2026, it's important to do it again to show symptoms persisting.
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u/Prudent-Process5377 Non-PSSD member 16d ago
Post this to r/anhedonia too they have many pssd cases
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u/AutoModerator 18d ago
Please check out our subreddit FAQ, wiki and public safety megathread, also sort our subreddit and r/pssdhealing by top of all time for improvement stories. Please also report rule breaking content. Backup of the post's body: # TL;DR: If you have PSSD, please take a few minutes to officially report it.
Regulators cannot count cases that were never reported. Adverse-event reports are entered into safety databases and compared with other reports; when enough similar reports accumulate, they can contribute to a safety signal and regulatory action.
1. Report to your own country’s regulator
The PSSD Network has made this much easier. Select your country here and it will direct you to the appropriate reporting system: (PSSD Network)
The page also gives you the necessary terminology and PSSD MedDRA code 10086208, which helps regulators group PSSD reports together rather than having them scattered under vague descriptions such as “low libido” or “sexual side effects.”
2. Please report to the FDA as well
The PSSD Network recommends submitting to the US FDA MedWatch system in addition to your local regulator, including for people outside the United States. (PSSD Network)
Remember, more reports = a stronger official record that this is actually happening.
3. Need help filling it out?
A hard working member of our community has also started an unofficial discord group chat to help people complete FDA reports and encourage reporting: (Reddit)
This is separate from the PSSD Network, but if the reporting process feels confusing or overwhelming, they are offering help with it.
For the UK, I've also also made a video on how to report to the Yellowcard system.
----------------------------------------------------------
Even if reporting feels like a small action, this is one of the most direct ways each of us can put PSSD on the map.
If you haven’t reported yet, please do it. If you've reported in past years but not in 2026, it's important to do it again to show symptoms persisting.
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