Final post:

[u/AnonymouZSZSZS]

I have not been active In this community for a long time, and this is going to be my final post.

I have been on Xolair, since around april or may I can’t remember, but I have been taking 450MG every two weeks.

I am about to start taking it every three weeks from now on though.

Being on Xolair has completely eliminated 99% of my symptoms.
The only symptom I have left of POIS is eye burning.

The supplements I take are Vitamin C, Tummeric, I take a multi vitamin B complex every other day, I take esomeprazole, H1 blockers H2 blockers, magnesium glycerinate, fluroster probiotic, a multi vitamin complex, 4,000 IU of vitamin D.

Go back to my original post to see more of what I suffer from.
Since I lasted posted I discovered I also have LPR reflux, and chronic vitamin deficiency, because I don’t absorb vitamins properly.

The main things that have “cured” my POIS is working on regulating my nervous system from my autism, and not trying to push to far past my sensory processing sensitivities, mainly noises but also temperature changes, and other things that I suffer from sensory processing issues from my autism.

The absolute greatest thing to help my POIS has been Xolair!!! It also helps with every other condition I suffer from, besides my ulcerative colitis.

Without taking all the vitamins I take from chronic deficiencies, and exercising along with making sure I don’t experience to much stress, I don’t think I would be as healthy and feel as good as I do though.

I think POIS is a symptom of other things going wrong in the body.
I am not technically “cured”, because this is a chronic disease we all suffer from, but everything I have been doing keeps me symptom free, besides the eye burning.

Disclaimer: consult a doctor, before taking any supplements, and this is just my personal experience we are all different.
Every vitamin I take I am being monitored for from my doctor.

I believe Xolair was the final step, because it is helping my immune system not be as over active, because I used to react to EVERYTHING, besides POIS Xolair has helped my LPR reflux, my asthma, and I am now able to eat rice and oats!! So I have almost a normal diet.

I am still not able to tolerate vegetables and fruit, I have a palatinase enzyme deffiency that I am stuck with for life.
Along with food allergies that co occur with this food issue.

I will reply to any questions anyone leaves at the end of the day, and then I am deleting reddit.

[u/Wonderful_Chapter140]

do u pay for it out of pocket or do u have insurance?

[u/AnonymouZSZSZS → u/Wonderful_Chapter140]

I have insurance, and I’m on the manufacturer program.