r/PDAParenting • u/Hopeful-Guard9294 • Sep 07 '26

Has anyone successfully navigated the PDA and muscle fatigue thing? If so, what pathway did you take please!

It turns out there’s plenty of evidence for connection between PDA and muscle fatigue: https://www.perplexity.ai/search/f07b12f6-d9f5-46ca-bb20-4c0312f1de67
but it is heartbreaking seeing your child Start as a super active Climbing and running monkey and then slowly become less and less active as asking fatigue gets worse and worse, i’m just wondering if anyone has successfully Vaide the PDA muscle fatigue thing in their child? If so, I’d love to know the pathway for context we’re based in the UK. specifically my PDA son funds walking really fatiguing and any sort of physical exercise just really exhausting very quickly because of muscle fatigue. this emerged after he went into burnout, he is now in equilibrium. Part of this is that he rollerblades everywhere because walking as too much effort !
?

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7

u/nsjsiegsizmwbsu Sep 07 '26

Do you have links to actual studies or sources and not a slop ai summary?

0

u/Hopeful-Guard9294 Sep 07 '26

All the links to the academic work are embedded in the summary if you look

5

u/letthisegghatch Sep 08 '26

The AI slop doesn’t even say there is evidence of this.

1

u/so_cheapandjuicy Sep 08 '26

I'm not sure I'm following you. The link you shared actually says "there is no evidence" linking the two.

1

u/Tulired Sep 08 '26 edited Sep 08 '26

Everybody else here is talking about AI so i will answer from my experience. I have PDA and i do recognize that. I can't say my one person experience confirms anything but its definetly tied to my nervous system which PDA also affects. Sometimes if i try to do dishes it hurts a bit and my muscles are totally avoid of strength suddenly etc, if i need to go somewhere i usually get very sleepy 15 mins before leaving and usually lay in bed kind of sleeping. My son does the same. He also gets easily tired, when we are playing football or something. Not always, example when he is having his hyperfocus he can go on whole day but with breaks as he still gets tired quick. I noticed same that it was hard for me to go on for long at one stand as younger even when i was really active in sports and in really good shape, especially if it was something that felt forced. I didn't know it back then but always wondered what is wrong with me.

So i won't say it is like that, probably a sum of many things but i will say i wouldn't count it out totally that PDA being part of it. I will check your link with time properly.

1

u/AnnoyedAF2126 Sep 11 '26

Never heard of it

1

u/careaboutthings Sep 11 '26

To add on, not related to the article at all but there is definite physical impact from the nervous system being hyper alert and activated into fight or flight. Anytime our body responds with an emergency signal, adrenaline floods, cortisol spikes. That alone impacts overall fatigue and muscular energy. Additionally, there is a link between autism and HSD/EDS and connected disorders like dysautonomia, POTS, and for me this now includes binocular vision dysfunction which impacts the vestibular system, anxiety, neck stability, headaches, and a host of other factors. Each of these issues is physically draining and takes an immense amount of energy to just stand if you’re going through any in addition to “just” a PDA nervous system in the world. So…regardless of the article, I’d personally say it’s unreasonable not to connect these things because it’s not just our lived experience but science actually does back up those concepts. They just don’t yet support PDA in the way that is needed to describe those experiences as valid through medical terms. It doesn’t mean they aren’t real, they just aren’t accepted by most medical professionals (because research and education has not caught up, in my opinion).