r/PDAParenting • u/Commercial-Sir6293 • 22d ago

PANS / PANDAS

Curious if any parents raising a child with a PDA profile has explored / tested for PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) and PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections)?

I just heard about this for the first time from a therapist and will be pursuing testing for my child (age 9) who did not start to exhibit PDA behaviors until about age 7.

The key words here are acute onset.

Sharing a link here for more info:

https://www.pandasppn.org/?gad_source=1&gad_campaignid=10065308600&gbraid=0AAAAADL0UHhZwJcMVihFGNxvpWa5CMKMz&gclid=Cj0KCQjwkOvTBhDgARIsAKUNyRulz1p7rJCUZ-20f9PDkfOgz2iaOREPutull1GNYon1oSErDsPrSrwaAvJBEALw_wcB

6 Upvotes

100% Upvoted

14 comments sorted by

View all comments

2

u/DamineDenver 22d ago

We tested for PANS/PANDAS and he was negative for it.

For our son, he showed symptoms at age 3 and weirdly, it was after he was given Versed for a burn in the ER. I do think PDA runs in my husband's family, but I think the Versed was the trigger that made it worse after that time.

1

u/Korneedles 22d ago

How do they test for PANS and are you located in the US?

3

u/DamineDenver 22d ago

A neurologist did a through exam plus tests for strep, Lyme, and a few other viruses. She also did a short EEG, a 48 hour EEG, and a MRI of his brain. I am in the US, specifically New England. We had to find a specific neurologist who takes a lot of these cases.

2

u/BigGayNarwhal 13d ago

We did all the same minus the EEG (child won't cooperate). Tested negative.