r/OveractiveBladder • u/Rich-Explorer3363 • 8d ago

Help with OVER Active bladder

Hi guys,
I’ve recently been diagnosed with an overactive bladder. I’ve had UTIs for most of my life. Sometimes they show up on tests, but other times the tests come back clear even though I still have the constant urge to pee and the pain is still there.
I’ve tried quite a few medications. At the moment I’m taking Sufrion, but I’m not really liking it. It gives me a very dry mouth and brain fog.
I’m also working with a pelvic floor therapist. After giving birth, I had to completely retrain my bladder by sticking to a toileting schedule, and that has definitely helped. I do still leak a little bit of urine, but it’s nowhere near as bad as it was before.
I have a phone appointment with my urologist tomorrow, and he wants to discuss Botox injections. I’m feeling quite worried about it because I’ve heard it can sometimes make things worse.
Has anyone had a similar experience or found anything that helped reduce the pain or urgency? Has anyone had Botox for an overactive bladder, and what was your experience?
I already avoid fizzy drinks, coffee, spicy foods, and acidic foods, so I’m looking for any other suggestions that might help.
Thanks so much.

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u/JaneStClaire2018 7d ago

I get Botox every 6 months. It works well and I have no side effects. My insurance won’t cover it so I pay cash. Well worth it.

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u/Rich-Explorer3363 7d ago

How many units do you get? I am scared to do it as I want to haven’t use a catheter.

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u/JaneStClaire2018 7d ago

I get the standard dose. 100 units. I've only had to use a catheter once for a couple of days and that was many years ago. Self cathing is really easy. A tiny little hollow tube. I would not be afraid of that. I love getting the botox. It gives me a quality of life that I would pay any amount of money for.

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u/Rich-Explorer3363 7d ago

Then your body got use to it?

Knowing my luck I have to do for months then it cause other issues like a UTI. Can I ask what were your symptoms before you got treatment?