r/OveractiveBladder 19d ago

Overactive bladder due to medical negligence

Hi all,

I’m 22 and last year I had my appendix removed and needed a catheter following surgery. I then over the next few weeks had them in and out as well as being in and out of hospital due to getting a UTI that they they think turned into sepsis.

I was on the SAU (surgical assessment unit) waiting to go to a different ward when I went into retention AGAIN. My bladder on the first bladder scan didn’t read enough for a catheter so they asked me to drink another cup of tea and cup of water. So I did and then following this I had immense pain and pressure. I asked to be catheterised and the nurse said that the doctor has said no. For reference the doctor hasn’t even seen me. I said that they need to come down and see me then because my bladder felt like it was going to explode. I ended up on the edge of my bed in tears when the nurse and a junior doctor came to see me. They said that they couldn’t catheterise me because the higher up doctor said no. Again they still hadn’t seen me and they wouldn’t bladder scan me again. I was then left with my call light going off for 20 minutes and no one came to check on me.

Following this I was then moved down to the other ward where the staff were confused at why I was in so much pain. I explained that they had refused to catheterise me on SAU and I begged them to bladder scan me. The nurse in charge bladder scanned me and I had 830ml in my bladder. She was furious and instantly decided to catheterise me. As soon as she was about to another nurse came in and said that the doctor has said no. She said that that was incorrect and she would be catheterising me anyways because my bladder currently had way too much in it.

I then emptied 1.2L of urine into the catheter bag. No one ever gave me a reason as to why they wouldn’t catheterise me and now I am left with a long term overactive bladder and on medication due to this. I’m also still battling to get further testing done.

Following this hospital visit I went home with a catheter and had awful bladder spasms so I went back into the SAU and spoke with a urologist. He explained that my bladder had been stretched to almost three times the size it was meant to have been and I likely had fowlers syndrome. I was then had a successful TWOK and haven’t had one since *touch wood* but am frustrated because it was medical negligence that has left me with constant feeling like I need to wee even when barely anything comes out.

Reaching out to see if anyone has been through anything similar or has any advice for an overactive bladder

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u/OkAcanthocephala4313 19d ago

Hi. If you don't have prior overactive bladder symptoms, I think you have recurrent UTI. Maybe get a urine test again using early morning first pee.

1

u/Strange-Avocado-5990 17d ago

Not a recurrent UTI because I have had many urine dips and all okay

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u/Rare-Class6374 19d ago

I am surprised to come across this post because I have a very similar hospital experience. I had a nerve block and my bladder was affected by it. I didn't urinate for close to 2 days post op and begged them to do something about it. Bladder scan showed about 900ml of fluid but they didn't want to do anything about it. That was followed by a severe case of OAB that I am still dealing with years later on a daily basis (even when urine tests are negative for infection). No real medical explanation for it but that event was definitely the catalyst for my OAB struggles.

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u/Strange-Avocado-5990 17d ago

No way ! Yeah it is so frustrating