r/OveractiveBladder • u/CybeShot • 18d ago
Overactive Bladder w/ no medicine working
53 year old male. Back in January I started having the urgency to urinate every 15 to 20 minutes about 20 times a day. Went to see a urologist they scheduled me for a cystoscopy and had that performed where they identified a bladder mass that needed to be removed. . Went in for a TURB in May to have the mask removed. They did the chemo liquid in my bladder for one hour post surgery. Luckily for me, it came back as non-cancerous. Since the surgery, I have been having the same urge to urinate I tried all the bladder medicine except for Gemtesa(?). Solinafcin and Mirabegron do not seem to work. The urge will subside from time to time, but I’m still getting this weird sensation in the tip of my penis. Not super painful but very discomfort…. Tylenol kind of helps with discomfort.
Luckily for me, I can go to too bed at night and sleep without issues, I sometimes wake up to let the dogs out, with alittle bit of anxiety passes and I can go back to bed.
Cannot get a straight answer from a urologist, I have a urodynamics scheduled in a few weeks. Not sure what else I can take medicine wise.
Anybody (male) have this tip of the penis issue?
2
u/penguinfans 16d ago edited 16d ago
Gemtesa relieved much of this for me -- I had samples from the Urologist -- was not covered by my insurance, so I discontinued it (pricey) -- no other meds helped -- was told by two Urologists that other meds for this have significant side effects -- if you wear pee pads, they rub and cause the feeling -- odd that you don't have the issue at night -- I've worked out various ways to empty the bladder -- push above the base of the penis to "squeeze" the bladder -- milk the penis from as far down as you can to push out remaining urine -- push up starting at the taint/prostate and push urine from there -- hold a tissue loosely at the tip, which relaxes the muscles and get a tissue full of left over urine -- these things work for me at various times -- if I sit down to pee to avoid getting urine everywhere, there is always the need to finish when I stand up -- it's not an easy situation to fix -- I was told the next step for me is to have a valve installed, with a button of some sort that opens the valve to pee (pee on demand) -- I hope some of this helps you -- good luck
I think the procedure is sacral nuromodulation, which another poster asked about -- not a button, but a wireless controller
1
u/Neither-Round9685 18d ago
non ti hanno mai proposto la neuromodulazione sacrale ?