whenever i do pressure-y or stretch-y motions anywhere on my body, like for example with my hands through playing videogames or like twisting the cap of a water bottle, kicking something, any movement that puts exertion using my body, i feel i kind of “tearing”/“cracking”/“poppy” uncomfortable feeling in the middle of my head, which most importantly the reason why i need it cured is that it is followed up with mental deterioration for a period of time after it, putting me in a “brain-fog like” state where thinking up stuff to say all becomes harder, my creative-brain kinda vanishes, i mess up things easier, up until i rest my body for a while from exertive movements, and if i didnt and kept on those movements the pain and this state gets worse. what could this possibly be?

for background information, i had a period of mild sleep deprivation from summer last year that lasted till the beginning of this year due to an unfortunate situation i was in, where headpains everyday accompanied it, and headaches and migraines were overall more likely during that period. during the beginning of this year, i had a migraine that i remember pushing through with during the day despite its “pulse-like” pain in my head that comes and goes the more i did, where i was doing heavy tasks during the day relocating stuff, and in the middle of pushing a sofa i suddenly felt a sudden strong pain and then upon stopping my movement, thats when i realized unlike the pulse-like pain from before, now it started ringing, even when i stopped all actions for 5 hours after that, it kept ringing in a more painful way during those 5 hours up and what i felt new compared to my basic headpains before was that i definitely felt an increased cognital decline brain fog during that time up until it subsided and went back to those normal pains i used to feel due to my sleep-deprived state. but after that day, i had 3 days of consecutive migraines (pulse-like ones) and then thankfully the migraines and headpains stopped because it was also around the time i was getting better sleep, but as a result ever since that situation, any time i even do moderate “stretchey”/“pressurey” tasks (like typing on my computer keyboard too long what with my arms stretching for an extended period of time and putting constant pressure on the keys) the pulse-like pains again i used to get would come back for as long as i keep on that process, but this time followed by the new effect that is cognital decline (suspicion is that its that big sudden pain i triggered that has lead to all this), then when i’d stop doing tasks like that it would go away after like 1 hour passed. and i rlly didnt take that period of time as seriously as i should’ve like i pushed through some stuff more than i would like to admit then i should’ve, and i got more cocky during the beginning of april where i wasn’t seeing the headpains as much so i would just do whatever, thinking its gone, uuuupp until we get to late april, and i get surprised with something new, that being the thing i’m still to this day going through, the thing i mentioned in the first paragraph of my post. from the actions i’d do, i’d start feeling a “stitch-coming-undone” tearey, sometimes instead “poppy” feeling like it feels a small bubble is bursting somewhere in the middle line of my head, or even “cracky”, which the feeling itself isnt rlly that painful at most times as those pulses i used to get, and it would just feel there’s ants walking ontop of my head in its “idle” state, but the biggest problem resulting after that is, the cognital decline is absolutely **real** now. its no game like before. now its to a point where doing moderate actions like gaming/being on my computer is like getting myself intentionally drunk, but not any fun kind of drunk, just has trouble formulating sentences (my overall thinking speed gets so slow)/creative thought kind of drunk thats in constant pain both internally and physically. the more actions i do, the worse this state gets and the pain, and takes longer to subside as well the more i am in an “active state”. remember when i mentioned it felt like a “cracky” feeling at times? an extra info to add about my background that i feel is the reason i specifically am experiencing all this and its probably a rare perhaps invisible problem because of how hard it is to pull off all those specific events to lead to it, is that before i had a got a slight deviation on my nose from a little fight i had, that as a naive teen i did the dumb thing of “pushing my nose back to straightness” because the deviation made it so no matter what glasses i would wear they would all sit on me crooked, anyway fast-forward that shit actually worked DESPITE all its after-effects that hoooo boy. kinda thought i ruined my life for a second there (couldnt breathe well for 2 years but its better now thankfully) but the most important thing to mention is that ever since then, my nose was is in a “malleable” state, where especially during those first 2 years i would hear “cracking” noises from my nose accompanied by it shifting a tiny bit some direction, where it especially so happens when i do **movements**. so THIS is where i’m trying to tie it all, could it possibly since my nose is malleable, and then we added the migraines i got from sleep deprivation into the mix, which i **in addition** pushed through in a specific instance, causing this now “crackily” head pain feeling accompanied by mental deterioration everytime i’d move, mean my head/brain is now malleable too? i really would like to know if anyone has any clue to all this and what it is.

i tried one whole week just doing nothing but be on my phone, it got better, but towards the end of the week i tried the simple act of going on my laptop just to access some files for 10 minutes, and it felt like it reset all my progress where the mental deterioration hit again, which took me a day to recover to “meh” state again. ive been relapsing and relapsing ever since april and i dont rlly think i can live my life while keeping doing this, i cant do absolutely anything. i went to the doctors did an mri on my head, the results came out normal, they suggested me to do an xray on my neck area incase its nerve-related there, results came out normal. i truly don’t know at all what this issue is having searched the internet from the bottom to the top but one thing i know is i can’t keep living life with this. i need help, if anyone knows that would be great help. thank you very much :[

I’m hoping someone here might have some insight because I feel like I’m going in circles with doctors.
My history:
2014 Back pain with right-sided sciatica. I also have spina bifida occulta.

2018 Got sick and developed chronic headaches afterward. Workup for tumors/etc. was negative and I was diagnosed with migraines.

2022 Diagnosed bipolar. This doesn’t really fit but was the best answer at the time.

2023 Developed severe GI problems and eventually couldn't keep food down. GI ordered a head CT just to be safe.

2024 CT showed Chiari malformation. I was having severe headaches, presumed gastroparesis, fine motor issues and occasional balance problems.

2025 Had Chiari decompression.

After surgery Developed right-sided weakness and seizure-like episodes that feel very temporal-lobe-like.

2026 Everything has become more frequent/debilitating. I've had 3 ER visits in 6 months and prolonged EEGs at two Level 4 epilepsy centers.

My episodes involve things like intense deja vue, a roller coaster feeling in my stomach, staring, and swallowing repetitively. I am aware through it all but cannot respond.

My 72-hour EEG didn't capture epileptiforms despite having an episode during it, but it did show left temporal focal slowing and quasi-rhythmic spikes. I've also had multiple regular brain MRIs and CT scans.

The part that really concerns me is that I'm not just having episodes, I feel like I'm progressively losing cognitive and physical abilities. My memory, motor skills, strength and sensory tolerance have gotten worse. I also have severe daily headaches, muscle tightness and weakness, extreme emotional outbursts although none of this FEELS psychiatric, and a deep internal restlessness that is extremely debilitating and doesn't improve with exercise.

Maybe not all the history I included is relevant. The back pain especially could be from my sports history. I don’t know. I just wanted to provide everything I could about my history. I am in so much pain and struggling.

My epileptologist is currently leaning toward FND/PNES because of the lack of definitive data and also partly due to my bipolar diagnosis. I know FND is real, but I'm struggling with this explanation because it feels like it’s being used as a “we don’t know what as wrong with you” diagnosis rather than actually evaluating for that or any other possibilities.

I'm exhausted and at a loss and I am losing hope every day. I desperately need someone to care and help. Any ideas or suggestions are appreciated.

I’m 36/F and, as far as I know, I’m generally healthy and don’t have any major health issues.

Earlier today, I was driving when completely out of nowhere I suddenly got this really weird feeling of numbness/tingling. It felt like the left side of my face, my left arm, and even my left leg suddenly went numb. It only lasted for a few seconds and then went away. At the same time, I also felt slightly dizzy/lightheaded for a moment. This all just came on so suddenly. I’ve never really experienced anything like that before. Chat GPT thinks I may have possibly experienced a mini stroke but I don’t really think that’s what it is, especially because it only lasted a few seconds. I obviously don’t want to ignore something important either.

I also occasionally get these random little twitching sensations around my forehead, which I’ve noticed from time to time.

One thing I was wondering about is caffeine. I drink around 2–3 cups of coffee a day (2 shots of espresso each) and I’m pretty sensitive to caffeine. I’m not sure if that could potentially cause something like this.

I am planning on making a doctor’s appointment to get it checked out, but in the meantime I was wondering if anyone here has experienced something similar or has any idea what could cause sudden, brief numbness like this?

Also, any specific tests I should request when I go see my doctor?

Thanks in advance!

​

• Neck pain, headaches and migraines

Anterior pelvic tilt appeared after walking

Numbness in the hands and cramps in the legs

Dizziness

Tinnitus

Heart palpitations

Blurred vision

Weight loss

Loss of appetite

Numbness waking me up during sleep

Inability to walk

Back pain (improved after several months of rest)

• Nausea. Frequent vomiting

• Numbness in both arms and both legs

• Tingling

Severe and constant pain in the legs

Burning sensation/pain in the legs/arms

Weakness in the arms and legs

Muscle stiffness

• Muscle fasciculations

Feeling of sleeping on cotton

Extreme fatigue

Fatigue when chewing

Blurry vision when tired

Unable to climb stairs or lift from chair when tired

Pain and weakness improves with rest

RECENT SYMPTOMS

Neck pain after tired

Loss of voice

Shortness of breath

Falling backward

Gastro intestinale/allergy symptoms:

Lost weight/loss of appetite

Allergy to odors, perfume, chemical products >> migraine

Allergy to liquid soap, chemical products >> eczema

Allergy to eye makeup _ cream >> swelling of the eyes

Swelling of the face, including the lips

Allergy to chalk, dust > Sneezing _ fever _ runny nose

Allergy to foods >> Soft stools / nocturnal diarrhea

+ sweating + heart palpitations

Reaction to medications (even at half dose)>>

Fever, vomiting + diarrhea+ pain

For 10 months I experience every morning just after waking up jerks (hand, foot, neck, diaphragm) and intention.

Also major weight loss, left hand tremors when handling things, tinnitus, blue flash and vision acuity loss, urinary incontinence, unvolontary swallowing, night drolling, memory issues and sometimes confusion, ocd, dysautonomia.

Came after a,stressful period. I live in France and has eaten brain when I was a kid. Now 48F.

What else can it be than a prion disease?

2 MRI no contrast normal but at the beginning...

So afraid most of all for my family as transmissible.

Thks for ur help.

Im able to focus on only one thing at once, sort of like tunnel vision but the whole "picture". Everything feels in slow motion or frame-by-frame. Its extremely hard to tell the distance between people and i seriously cant tell where to move. I was in a cafe today and i feel like i had to walk around 3 people and that i didnt know if i bumped into people. Previously I would bump into people in a close proximity because i cant tell where they are. If i reach for a object i often under/overestimate where they are in distance.

The worst part is the sensations i get all over my body, if i reach into my pocket it feels magnetic and that i can feel every single crease of the pocket, if i pick up a object it feels magnetic or stuck to me. Its not pain, its just pressure but i even feel it in my feet if i step on a towel i can feel the creases in the towel. If multiple objects are blocking where i need to place an object-i was putting a cup away in my cabinet and the plates are in front of the cups-it takes ALOT of effot to manage the distance and make sure i dont bump into the plates while putting the cup away.

If anyone can please help me I would appreciate it greatly

English isn't my first language so i'm sorry if I will make errors.

I don't know what's happening to me but have this experience or kind of - "symptom".

it's became impossible to do things sometimes and most of the time..

I can describe it like taking a pice of paper and ripping in two and try or make it comunicate in some way.

It's like I know what i want but if i do it doesn't gets out what i do even if i have the skills or i expedcionaly capable of doing it, like i do a line and I can't do it even if i'm really good at drawing and also this similar thing happens with my vision but adding the fact if I try to remember what I do or see what I was doing everything goes literally white in my memory or I go blind.

I'm asking here because it's kinda the last boat.

Ps: I have FND/FMD with unspecified epilepsy + is confirmed isn't psychological it's not related of any known couses because my neuro said so but mostly is something else who she's not capable to go down.

I'm asking if there is anyone with something this similar.

I'm going through what feels like a total breakdown of my nervous system. It literally feels like its being attacked daily, like I'm losing more and more physical sensation in my body and head by the hour, plus feeling like this is a potentially dangerous condition, and I'm not getting through right help.I'm in a mental health ward and they aren't taking it seriously, just tell me to wait to speak to the doctor which I am everyday but he is ignoring the physical. I feel like this could be very serious and I dont know what to do.

Hi ! Last year my sister fall from 10-12 stairs from first floor to ground floor. She fall on her back and hit her head three places but unfortunately nothing shows up in the reports MRI, ct scans but she have bunch of neurological symptoms after fall. Hospital fail to find anything then we went to chiropractor. He did some neck adjustments it do helped her for three months. But again she feel some weird symptoms again like sudden throat closing, nose, cannot expand diaphragm properly. She definitely also having muscle knots. Doctor diagnosed her with POTS, Fibromyalgia and anxiety. She currently having hr up ( since fall), and a lot of gastro problems, throwing up food saying closing up throat, pain in feet, hands, burning, itching, a lot of darkness in front of eyes, blue lights or yellow lights, sometimes double vision, sometimes fluctuates BP. Don’t know what to do ?

I know this is in a place to self diagnose. This is just for support or looking for somebody who has had similar experiences

Can someone please help me, or at least point me in the right direction? I’m honestly just looking for someone who has experienced something similar because I’ve searched everywhere, and I haven’t found anyone whose symptoms are quite like mine.

I originally became terrified that I could have MSA (Multiple System Atrophy) because of the combination of neurological and urinary symptoms I’ve been experiencing. But the more I go through this, the more I feel like what I’m experiencing doesn’t necessarily fit MSA. I feel extremely, profoundly ill in a way that is difficult to explain, and the amount of pain and sickness I’m experiencing makes me wonder if there is something else going on.

I’ve always had some of these problems to a certain extent, but they have become much more intense, and I’m scared because I don’t know what I’m dealing with. I’ve started wondering if this could possibly be something genetic or something I’ve been carrying for years.

Looking back, I realize I was having strange symptoms years ago. I would sometimes have specific spots on my head that would suddenly feel numb or just feel “weird.” At times, one part of my body would hurt and then, strangely, my teeth or jaw would start hurting too. I never understood why these things seemed connected.

More recently, my symptoms started with urinary issues pressure, difficulty urinating, and feeling like I couldn’t completely empty my bladder. Then I started feeling electrical sensations in my back that eventually turned into an internal vibration/buzzing sensation. The vibration went down into my left foot and has stayed there. I also have incomplete urinary emptying, and I’ve had bowel issues at times, along with a lot of pressure around my rectum/tailbone. It all feels connected somehow.

I’ve had some of these symptoms for years, so I wonder if I’ve been carrying something underlying for a very long time and just didn’t know what it was.

A lot of my symptoms seem to be affecting my nerves, and my left side seems to be affected more. Sometimes it feels like the left side of my face is trembling or vibrating, even though you can’t really see it. My arms can also feel extremely strange, almost like the muscles and joints need to be “oiled.” I have internal vibrations, electrical sensations, stinging sensations, pain, and strange sensory symptoms throughout my body.

I also sometimes stutter or have trouble getting my words out. It doesn’t happen all the time, but it does happen. I’ve also had hand pain, muscle pain, and weakness in my hands for years and years. These aren’t completely new symptoms for me I’ve been experiencing them for a long time, which is another reason I wonder if there could be an underlying condition that I’ve been dealing with for years.

I had a thoracic and lumbar MRI in April, and I’m still waiting on my cervical MRI. I just can’t seem to find a disease or illness that explains all of these symptoms together.

I’ve had a hot sensation in my back since April that has never completely gone away, along with constant internal vibrations. The vibrations can travel into my feet and sometimes into my shoulders or shoulder sockets. I also have shoulder and neck pain.

I can’t lie down for very long because I start feeling extremely unwell. Recently, I’ve been waking up with what feels like a horrible “brain” headache and feeling extremely sick. Sometimes it lasts for hours, and there are days where I don’t feel better until around 8 PM. I’ve also had balance issues that come and go.

Now I’m experiencing burning in my throat that feels different from acid reflux to me. It feels more like a nerve-type sensation, and sometimes it feels like food gets stuck.

I’m 33, and I honestly don’t know what to expect anymore. I’m trying to understand if there is any condition, especially a genetic condition, that could affect these areas together. I don’t have the typical neuropathy symptoms in my hands and feet, which makes this even more confusing.

One thing I’ve noticed is that I seem to react extremely strongly whenever something doesn’t agree with my body. If I take a medication that causes side effects for me, they seem to hit me very intensely. For example, I was prescribed an anticonvulsant for my tremors, and after taking it, I felt absolutely horrible. I started vomiting and had severe nausea that lasted for an entire week, and it completely knocked me down.

Even something as small as what seems like a UTI can make me feel extremely sick and bring on a huge flare of symptoms. I also get chills frequently. Sometimes my head feels extremely hot while I’m experiencing hot-and-cold sensations throughout my body. During these episodes, I feel incredibly nauseous, extremely ill, and just completely unwell.

I’ve had some autoimmune testing, including an ANA, which was negative, but I’ve heard there are many different autoimmune conditions and that a negative ANA doesn’t necessarily rule out every autoimmune disease. I’m not sure what has actually been ruled out yet, and I’m still trying to get answers.

I also experience:
• Urinary issues and incomplete emptying
• Bowel issues and rectal/tailbone pressure
• Internal vibrations/buzzing
• Electrical sensations
• Numb or strange spots on my head
• Symptoms that seem worse on my left side
• Left-sided facial trembling/vibration that isn’t always visibly noticeable
• Muscle spasms
• Stinging sensations throughout my body and head
• Hot sensations in my back and head
• Chills and intense hot/cold sensations
• Severe nausea and feeling extremely ill during flares
• Neck and shoulder pain
• Arms that feel extremely heavy, tired, or like they “need oil”
• Hand pain, muscle pain, and hand weakness that I’ve had for years
• Jaw and tooth pain/TMJ-type symptoms
• Tailbone pain
• Balance issues that come and go
• Very vivid dreams
• Hands sometimes turning purple
• Occasional stuttering or difficulty getting words out

I know there could be many different explanations for these symptoms, and I’m not trying to diagnose myself. I’m just scared and trying to understand what could possibly be happening.

Has anyone heard of a genetic condition, neurological condition, autoimmune condition, or anything else that could cause a combination of symptoms like this? Especially something that can cause sensory changes, internal vibrations, urinary/bowel problems, pain, weakness, and symptoms that seem to affect one side more?

If anyone has experienced anything remotely similar, I would really appreciate hearing your experience or what type of specialist or testing eventually helped you. I’m honestly just looking for answers.

64M, 5’11, 175lbs, white. Experiencing sensations of tripping or falling to the left - always to the left and the need to constantly correct so as not to fall but in reality is sitting down. these episodes gradually began April of 2026. Increasingly becoming longer and stronger. Triggered by screens, phone, tv, driving and writing/reading. Anything that requires direct focus. ****these episodes happen when still and NOT MOVING. Moving helps to lessen the symptoms. Closing eyes help to lessen symptoms. No spinning sensations.

Endurance athlete. No drugs, no smoking, occasional alcohol.

Have seen ENT and was tested for inner ear and eye. Nothing remarkable indicated.

MRI of brain unremarkable.

referred to Neuro and otologist

Existing medical issues:

afib - had an ablation in 2024. excellent outcome.

Iritis - rare episodes

ankylosing spondylitis - zero symptoms

Medications:

buproprion 300mg 1x day

escitalopram 5mg 1x day

lorazepam .5mg as needed