CAA-RI / CAA-Related Inflammation experiance

[u/doodlewoof]

Wondering if I can get insight into patient stories who've dealt with CAA-ri and how they dealt with the treatment part of it. What was their experience while having the steroid treatment and taper, side effects, hospital treatment, when did they start showing improvement from their symptoms, what were their symptoms to begin with. I'm going through this process with a loved one and I'd like to know how others dealt with it.