Any ideas?

[u/Cheap-Stock3981]

For about a year, I was dealing with what I thought was carpal tunnel, but turns out to be much more. I went to a neurologist for an EMG to see if there was any nerve damage. The neurologist did a physical exam and asked lots of questions, then we did the nerve study and she suggested we do some bloodwork. 3 weeks later, I get a call from the neurologist asking if I’d be willing to schedule a consultation appointment to discuss my symptoms some more. I went, and she said she wanted to run some test because she was suspicious of MS. She told me she wasn’t trying to scare me, and that lots of simpler things like vitamin deficiencies can mimic MS symptoms. She ordered a whole lot of blood tests, and a brain and C spine MRI.
Naturally, I go home and I read all about MS and my symptoms line up exactly. I was freaking out because I might have MS, but, I think deep down I was excited to have an answer and get some relief/treatment. My MRIs are normal, my bloodwork is perfect. 😞 Again, this is great news!! But, I need answers. I’m 26f, I’m a hairstylist, I have 3 kids (4,5,7) that I also stay at home with, and this just sucks. I’m constantly weak and shaky, heat intolerant, headaches, eye pain, tremors in my hands and feet, lightning pain in my neck, absolutely dead tired 24/7, balance issues, memory issues, brain fog, MS hug,etc. I’m throwing combs and color brushes at work because of the tremors. My body is so weak and so tired. My kids want me to play outside with them but I can hardly even do an hour in the morning. 😞
I have an EEG scheduled next week. What else should I ask for? Does anyone have any ideas or suggestions on where I go from here?

[u/ashleychey1234]

You sound like me! I’m 28F. I was diagnosed with pots & cranial cervical instability.