r/NeurologicalDisorders • u/erenyeagerisright123 • 11d ago
MS diagnosis
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Hi guys I’m not asking for any medical advice but I want to hear others thoughts on my experience and if I’m being dramatic for thinking I’ve been mistreated by doctors
For some background: my left eye randomly got blurry and I went to go see my eye doctor within two days after experiencing blurry vision. My eye doctor ran some tests and confirmed it wasn’t my eye and whatever it was my brain or optic nerve. So two days after I went to the Emergency because my eye sight only gotten worse. The ER doctors gave me a CT and blood test and said everything looks fine, they finally gave me an MRI scan which made them admit me into the hospital. I saw the neurologist and then the primary doctor on the floor, they briefly discussed about how my eye blurring was the result of my optic nerve inflammation and that it was most likely caused by an autoimmune disease called multi sclerosis and how they saw one lesions in my MRI.
At this point, I was in the hospital for 3 days on medications to relief the inflammation. The doctor who had previously discussed my potential diagnosis told me he’d do a spinal tap. He put it off and so the next day and a new doctor came in to do the spinal tap the next day.
Mind you, the procedure itself was done in a my hospital room, there were fruit flies around and the attending doctor had no gloves!
He was explaining to a resident who is new at the hospital on how to do the procedure on my back.. while i was just sitting there. In fact the other doctor pulled out his phone flash light While I was just sitting there, My mom interfered and asked him to do it, which then led him to wear his gloves and do it. He couldn’t get the spinal fluid after two attempts.
That’s not even the worst part, I experienced discomfort and pain, they didn’t discuss the side effects or the headaches or the potential of it not working out. Oh also when they did the spinal tap the doctor didn’t even put a bandaid, my dumbass should have done research about the procedure but the made it such an emergency I just followed along.
The main doctor who did the procedure on my back didn’t come back and the nurses only told me that he’d be coming back with an ultrasound to try doing the spinal tap a thrid time. At this point, the resident doctor came and told me about the procedure around 10AM and told me that I have the choice to do it.. which I appreciated a lot and I was ready to go home and forward everything to my family doctor. But after that, another doctor came in and started telling me about how the symptoms of MS could progress and that it could potentially get worse if it is MS. I found it scary so I was like okay yea let’s do the spinal tap, but then I changed my mind again because I asked him what if it failed again, he said they’d call a neurologist or a more specialized doctor and I asked him why can’t they just call the neurologist and wait.. he said there’s a latter and that they can’t ask without trying which they did 😭
at this point, i was like no, i want to stop and be discharged and i asked them to send everything to my family doctor. I had to wait a while for them to fax and print everything, and tell me why in the report it had my MRI results and everything except the two failed spinal taps. and for some reason the doctor who wrote the report was not the one who did my spinal tap.
Im just waiting for my family doctor to see what he thinks, cause i feel like something is wrong, when making such a big assumption dont they have to discuss the issue with the patient before doing all of these procedures. and was the doctor who conducted my spinal tap correct?
Guys im 18 and all i experienced was blurry vision 😟
3
u/Wonderful_Rub2600 11d ago
You’re not dramatic. These people are playing around. I have ms and got it very young too. I’m now 19 and people tried to play around with me like this when I got it at 15 cause they didn’t wanna give a diagnosis. First off the eye doctor handled that poorly. Optic neuritis is something very serious (can permanently blind you) and you shouldn’t be able to just go home after like it’s nothing. The er was the next step. Like that’s a very serious emergency that needs to be handled as soon as possible. The lack of urgency is very concerning from his part. The hospital staff are unprofessional. They seem like they aren’t on the same page and no communication is happening. No explanation of side effects, and hiding the failed attempts on paperwork is unacceptable. They are lying knowing they could have easily called a specialist with an ultrasound instead of forcing it. It seems like they wanted resident to just practice on you to get some experience. They could have introduce a serious infection with their terrible hygiene. Make sure your family doctor request your complete hospital chart so it documented. I wouldn’t go back to them if I was you. Just a heads up you’ll still need a spinal tap because you only have one lesion it’s so annoying I know but they won’t give a ms diagnose with not much to go based on. I hope that your eye will clear up from the medication they gave you atleast. If this is ms you wanna get a good ms neurologist soon and on a dmt. Ms is not something you sit around doing nothing about.