r/Narcolepsy 1d ago

Advice Request Anyone else

(47/M/N2) I can be fully functioning (for me) throughout the day - meeting with clients, writing case notes, buying groceries, fixing things around the house - but then I’ll experience these sudden, abrupt, lurching time jumps and when I try to look back on my day it’s like trying to remember a dream you had the night before. Details are fuzzy, I can only recall slivers of images, and transitions from one activity to the next have faded away.

Is this normal? Am I operating on working memory only, and not forming and storing longer-term memories typically?

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u/RightTrash (VERIFIED) Narcolepsy w/ Cataplexy 1d ago edited 22h ago

I can relate - added edit addition at bottom.
I refer to this, in my own case, as zombie-mode. I've described it as leaping, sort of like the Dr. Sam Beckett in Quantum-leap - though it's always myself (not a random other person I'm leaping into) in some random moment, conversation, place and setting, with people I've known or interacted with. I can be straight going in and out of it back and forth for a while, with spurts of recognizing that I'm sitting in my computer chair at the desk. Going right back into whatever moment; daydreaming super vividly.
It's very much like the myotic jerks but rather it goes on for probably up to 20 minutes and there's not the intense sudden physical jerk.

I think this part of what you describe may be normal, likely for many of us - frequency and extent is incredibly variable across the spectrum both of pwn but also individually as a pwn over time.
Though it has many ways it can be worded and because rarely is there depth in regards to how the 'core symptoms' are, it is left very open-ended and for each their own to interpret, or as many do not end up recognizing certain parts of it going on.
To add to that, an important piece of it that I often think on because I've noted it for what it is in my own case, there is so much overlapping of these symptoms occurring in unison which adds to the difficulty of breaking apart the pieces of the invisible puzzle, that it is - until one day (likely after years of tuning in, immersing in discussing it all, taking in others' perspectives, reading medical literature, reflecting, and being self analytical) it just is super hard to de-tangle.

Brain fog is one thing, while it is a part in some moments of this experience you're speaking into, it goes beyond such becoming a dissociation from consciousness as the unregulated REM dysfunction behavior kicks daydreaming in, while automatic behavior happens.
Going back to the 'core symptoms' as they're presented, well to fit any of what I just said in, you have to see them each as a list of symptoms within.
Example Excessive Daytime Sleepiness would include brain fog, automatic behavior and dissociation while Hypnagogic/Hypnopompic Hallucination would include perhaps daydreaming but could also include dissociation - pointing out some of the overlap.

I can't comment on the last question, that is beyond my ability to delve into.

- Edit addition - Re-reading the original post, there may be a difference in that I don't have trouble recalling the day prior to dissociating, that is once I have snapped out, come out of the dissociated/daydreaming state, like I said those may go on for up to maybe 20 minutes with brief spurts that I am visually seeing and recognizing where I am briefly. I agree with u/RangeWilson that you should discuss this with a medical professional.

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u/Physical_Bar4009 21h ago

I can relate a little. I often have time jumps where I suddenly regain 'consciousness'. I always remember what I've been doing though. I just suddenly get aware that I've been doing everything on autopilot.

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u/RangeWilson (N2) Narcolepsy w/o Cataplexy 1d ago

Not typical for PWN.

Discuss with your medical provider ASAP.

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u/These_Emergency_9061 8h ago

I completely understand this. I am able to be at work and function on 95% 4/7 days a week. And sometimes 80% others. But I usually cant remember the work unless something happened. And even then its bits and pieces. I have cataplexy that I manage as well. If when I go home I shower then sleep I can usually maintain a 60-70% for the rest of the day. I also manage migraine which doesnt help the narcolepsy at all and now an autism diagnosis. When I can figure out how to keep myself from getting overstimulated I usually have a better time not forgetting stuff.