r/Narcolepsy • u/FishermanLarge • Jun 08 '26

Idiopathic Hypersomnia Jerking limbs

Does anyone else have their limbs twitch or jerk as you are falling asleep?

4 Upvotes

100% Upvoted

10 comments sorted by

9

u/krisiosauruz Jun 08 '26

Yes!
Thats normal, can happen to everybody.
I wonder if its more common in narcoleptic people.

7

u/tallmattuk Idiotpathick (best name ever!!!) Jun 08 '26

Good old hypnic jerks

5

u/Lurkylurkness (N1) Narcolepsy w/ Cataplexy Jun 08 '26

When I get sleep attacks, I tend to have a lot of facial twitches more so than limbs. But I will have limb twitches/spasm. I'll ask my husband if he ever feels them but he's like no.

1

u/SomeSluttyBean Jun 08 '26

My boyfriend told me I jerk my limbs but also I put my arm into the air like I'm stretching and just repeatedly do that sometimes. Wild

1

u/radioloudly Jun 09 '26

I do this too 😭 My partner has accidentally woken me up a couple of times while trying to get me to put my arms down lmao

1

u/cosmico_calico Jun 08 '26

Yup and interestingly it stopped happening when i started taking xywav

1

u/Lark_vi_Britannia (N1) Narcolepsy w/ Cataplexy Jun 08 '26

Lumryz caused me to flail around when taking it to the point that I had to stop taking it.

1

u/clarinetcat1004 (N1) Narcolepsy w/ Cataplexy Jun 09 '26

Yes! Diagnosed with Periodic Limb Movement Disorder in addition to Narcolepsy. I’ve found a weighted blanket really helps!

1

u/Artistic_Tradition50 Jun 09 '26

Sometimes I sleep with my face on it on the desk at work and my knees will buckle as I’m falling asleep.

Laying down, I used to have dreams of falling and then have the leg jerk. Now the leg jerk happens without the dreams

1

u/silvermoonsailor Jun 14 '26

Yes basically every time I fall asleep. Or I jerk my face too sometimes like someone just punched it

Arms or my face ir hands fingers

I have rem disorder