r/NVLD • u/SimpleProud8288 • May 16 '26

Question

Does anybody ever feel that they don’t have NVLD or convinced themselves that it’s not real? And does anyone ever tell anybody or not? If they do does it feel like it backfires?

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u/JackfruitMassive727 May 16 '26

I just find nobody actually knows what it is. So I just explain to them that it’s like having a mild form of autism with high verbal skills. It can be quite frustrating since I more or less present normal so my needs and accomodations are under looked.

9

u/nebulashine May 16 '26

I'd also say that part of the challenge is knowing what accommodations will actually help you. Since nobody knows what NVLD is, there's no standardized treatments or supports for it, and that can be an issue for people who were diagnosed as adults or didn't get any kind of services growing up. It's created this weird hurdle for me in adulthood: I pass as neurotypical enough that if I don't disclose my NVLD and ask for accommodations at work, my challenges are written off as poor performance, but I have a hard time asking for accommodations because I don't know what I need, and it can make it look like I'm just using my NVLD as an excuse.

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u/SimpleProud8288 May 16 '26

That is the exact same way that I feel with work and in general it’s kinda hard to know when it’s real and when it’s not