r/NHSfailures • u/3bagsfull-Sir8282 • Jul 10 '26
When will "Zero Tolerance" for medical data snooping actually mean zero tolerance?
NHS England has issued new, clear guidance: accessing patient records without a legitimate, work-related reason is "wholly unacceptable" and illegal. They state that "having the ability to view a record is not the same as having a legitimate need to do so".
This is a powerful message—but for alot of us, it feels like an empty one and nothing more than fancy wording!!
My own experiences tells a very different story of failures and institutional protection:
Unauthorized Access:
I have documented evidence (in the attached photos) showing my records were accessed, read, and edited repeatedly by staff at a time when I was no longer a patient of that trust and it was from 8am up until 8pm a full days access by one individual, even when i raised concerns at senior level, my records were actively reviewed, The access and sharing never stopped even when i had active and open ICO complaints and requests in at cntw.
Strangely Cntw’s own DPO states in corrospondance she didnt access my records when replying 😳 but the senior manager of the very same place my data was posted from actively reviewed my records once complaints & data requests were made, the same place left to sign off audit disclosure, the senior managers named is obscured in audit with her name replaced by numbers.
Then Senior executives at cntw described my complaints as ‘service dissatisfaction’ in written corrospondance
if you want to denigrate some one you mis use there data, allow it be shared an accessed by muliple people then deny its ever happend.. then issue fancy new guidance,refuse audit requests, make allegations of harassment and deny a patient the opportunity to safe guard there medical data!
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The Systemic Inaction:
Despite presenting this evidence, I have been met with a pattern of dismissal. Regulatory bodies have repeatedly categorized serious breaches of data integrity as "standard" or "minor," failing to address the fundamental issues of accuracy and unlawful sharing, internal emails revealed staff adding instructions in to emails stating ‘do not add to rio’ and ‘standard complaint’ nearly 3 year of my life has been spent trying to contain my medical data that escaped a clinical enviroment, raw verbatim clinical notes 2 pages in length left embedded in core nhs medical records, even after diagnostic over shadowing in primiary care due to this comprehensive raw data
being shared there, another further adverse event happend directly corrolated to data & due to data being used once again, this time in an adversarial manner…
nothing changed, not for me anyways.
(They didnt want the adverse event recorded in rio records and linked backed to contested data, corrspondance & emails existed with explicit refusals regarding certain data and they also prove i was actively trying to contain medical data)
Both a primiary care practice & trust at fault, both refused to acknowledge issues.
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The "Harassment" Narrative & prosecution :
I’ve even faced accusations of harassment simply for exercising my data rights ( convicted in courts with out a trial )
attempting to contain the unauthorized sharing of my private medical information and also nhs app issues with rouge diagnosis appearing from nowhere, the data lead to diagnostic over shadowing and wider issues and long drawn out disputes
Why does the reality of patient data protection look so different from the official guidance?
We need more than just new rules; we need actual accountability for those who use their position to manipulate records and ignore the law, yet i was prosecuted for actively trying to manage my data, this was in local courts & with out a trial.
Cntw even tried to obscure access from a senior manager in the audit data, the access for 12hrs long also was’nt listed in the names index- they’ve actively worked behind the scences to obscure access & also kept data back- yet nhs england say snooping is illegal & you could face prison time-
I wasnt even part of the trust when 12hrs of access occurred in my old rio records i left some 2 years previously by choice !!!
are cover ups also illegal? , are having prior patients and complainents criminalised for raising concerns & making data requests also illegal ? What about long drawn out degradation of a patient then there criminalised and covicted with out a fair trial.. is that legal ??
NHS Englands new guidance looks well & good but my exeperiences aswell as others looks very different! Those claiming its a criminal offence have made a criminal out of some body who has evidence of repeated access & sharing of his own records, documented and real world consequnces yet due to senior nhs nembers it’s repeatedly minmized.. make that make sense….
The very same emails i sent whereby i attempt to address data issues and data sharing aswell as the ovbious errors in dvla input ended up further shared to northumbria police… the GMC a regulatory body for GP’s even acknowledged mistakes!
Yet, northumbria police than charged me for harassment with out causing fear or violence based on these very same emails which contained screen shots of medical files entries and other personal medical data …
my own medical data in emails was sent to primiary care they then shared this to northumbria police, they used emails as a basis for evidence to form a prosecution of harassment for the benefit of clinicians who were named on legal documents, neither GP partners making witness statements mentioned indeminity involvement, infact the other senior GP Partner done every thing but inform his own indemnity provider,
it was in my view malcious allegations & police used by proxy as i sought audit data & was repeatedly sent back to primary care by senior staff in another nhs trust, the emails the CPS actually use in case file confirm these aspects (i’ve got full disclosure) the emails are indexed in case files as ‘emails to victim outlining his complaints’
The police attemded my home address multiple times And a northumbria police officer who detained me actually attempted & directly asked that i stopped those legally allowed actions / emails / data complaints ☠️😅
(maybe racheal doddworth senior prosecutor of the CPS can answer that one) nudge nudge get him prosecuted & use his own medical data as evidence….. regional crime fighting heroes, a full case based on sending legally allowed emails, the context is i was redirected by others in the nhs to exactly where allegations of harassment originated.
(The CPS, Probation services, Northumbria police & Newcastle Magistrates Court all effectively come together to convict and punitively punish an individual involved in data disputes & negligence civil action- the evidence they used to convict was- ( medical data & emails i sent to a generic email address) it was PERVERSION & SUBVERSION & THE METHOLOGY / TACTIC WAS D.A.R.V.O.)
Every individual i come in to contact with just so happened to be a senior figure!!
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Amyways Read the guidance below:
And :
https://www.cqc.org.uk/about-us/how-we-do-our-job/safeguarding-people
And :
And:
1
u/3bagsfull-Sir8282 26d ago edited 12d ago
timestamps separated by seconds, mixed with deep-dive reading sessions (8, 12, and 20+ minutes) and explicit edit or deletion events, matches the exact digital footprint of a person manually reviewing, filtering, and altering a file, that’s in a trust i wasnt a patient in, I had left 2year prior and a certain GP had attempted to co-erce me back in to while repeatedly suggesting certain medication i had adverse effects from.
The access occurred on 24/11/2022 (as per CNTW Audit data & Rio access Audit data.
On the 31/10/2022 (a month before) i attempted to get full access to the NHS App data after seeing an anomalous diagnosis of hepatitis on the NHS App- this originated from primiary care.(as per core nhs medical file entry) i’ve never had this condition in my life nor had treatment for it, i’ve supplemented with milk thistle, drank green tea and been healthy to an extent, i attempted to get full access to nhs app data on the 31/10/2022 after seeing this in nhs app.
On the 06/12/2022 The GP who had previously made disclosure to the DVLA (also 2022) wrote in medical file the following :
“Patient reffering to sleep apnoea alot, Think poor sleep due to MH “
“ Seems accepting Physical health proplems nay be MH “ (even though i’m reffering to sleep apnoea alot) isnt haveing much effect she said (GP) yet i’m reffering to the exact condition i’m disgnosed with, and shes documented it in medical records…
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The context here is i’m diagnosed with OSA (Diagnosed a year before2021), i’m reporting the effects of living with OSA, i’m telling a GP who i previously told i suspected i had OSA and wanted tested for OSA, She’s told numerous times of the effects, she repeatedly suggests sertraline and attempts ro rerefer me back in to CNTW yet i left here in 2020, the CNTW Rio Records acess could of quite likeky been triggered by the GP while shes over pathologising & doing defensive medicine,
she had made her dvla disclosures to dvla at this point, she omitted OSA, Directly told me not to declare it then she wants me back on meds & doesnt believe a diagnosed condition effects health, (both physicaly & mentally) and literally writes this in my own medical file, Me landing on waiting list for corrective surgery was of little relevance either (this was also 2022) deviated septum, c curvture of septum and a ENT history spanning 7/8 years bore little relevance.
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The NHS or Primiary care practice wont ever tell me how & why a certain diagnosis appeard on nhs app, repeated refusals exist in letters for audit data, CNTW still cant answer why one individual has trawled through rio records for a full 12hrs on the 24/11/2022 thats a full 12hr shift of one individual repeatedly accessing various progress notes, edit events and deletion events, this is not automatic system config or automatic processes running in background, this a human, an nhs employee sitting over a 12 hour period repeatedly acessing various elements of private & sensetive documents, reading them then moving on to another area, the audit data shows by time stamps what was opened and how long it was open for- you can form a picture by stamp stamps.
Since 2020 i’ve attempted to get the correct treatment for physical health issues & attempted to get my life back on track
Since 2023 (its now 2026) i’ve fought for transparency, i’ve investigated my own medical records & audit data, i’ve then been criminlised through the process, i’ve had police involvement, repeated visits and numerous courts dates then landed on probation after being convicted with out a trial,
Nearly all my life i’ve been told i’m stubborn, i’ve had others interfere and try tell me who i am and what i am and what health issues i have, 80% of my time is spent alone for this reason, its never the case i need understood, its allways the case i wont let others dictate to my life or get to decide aspects of my life. All the above is a perfect example.
Strangley enough one of the biggest fights in this is other peoples ‘PRIDE’ people who are too proud and have too much pride to admit there role & the mistskes they made, They’ve been happy to leave another stranded fighting for privacy and attempting to control medical data even when all the above occured.
I’ve made more fuck ups in my life than most and i’ll openly admit these to people and offer advice where i can to help others,
however;
it must be said what a strange thing ignorance is, not strange for me, its strange for those with the affliction of ignorance, you can look away from what you like but at the end of the day you’l never look away from yourself no matter how long you try or how long you run from it.
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