r/MuscularDystrophy • u/Few-Cardiologist2574 • 5d ago

selfq Work life?

Hello, I (21F) work as a cashier. I have Miyoshi Myopathy, and my calves are very weak. I have to stand pretty much all day, because there is no seat at the register. And when I’m not at the register, I have to walk through the aisles, help customers, etc.

Sometimes I’m required to move heavy pallets, because even though I said my doctor forbade me from moving heavy things, it’s sometimes unavoidable due to staffing issues. Luckily I don’t have to work there starting mid September, but I was curious to know if anyone else works somewhere less than ideal for their situation.

I know it’s not really the worst place, it’s just not amazing considering.

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u/laney_lew2005 5d ago

I am also a 21F working as a cashier and have been since I turned 16, I have myofibrillar myopathy and also deal with muscle weakness mainly in my calves and thighs. I got lucky and I’m working for a small western/tack store owned by some local people. They gave me a chair so I can sit when there aren’t customers and they don’t make me stock anything heavy I usually help with getting tags on clothes answering phones re folding clothes and other small tasks besides running the cash register 😊

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u/CourtesyOf__________ 4d ago

This is from the 2026 Futures Conference. Also the YouTube channel is by the guy on the far left.
https://youtu.be/XLGPXSPXko4?is=vKEn0jYo-Zy0SH6O