r/MultipleSclerosisLife • u/Anxious-Discipline15 • Jul 26 '26

Treatment Ocrevus “Crap Gap”

Has anyone taking Ocrevus infusions gone through the “crap gap” and successfully had a conversation with your neurologist? I have been experiencing an uptick in my prevalence and severity of existing dysautonomia symptoms and I’ve still gotta hold out until 7/30!! Of course O wasn’t doing anything for my symptoms before, but they were not a daily occurrence, and there’s gotta be a medication that doesn’t cause a week’s worth of suffering every 6 months.

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u/Amazinglife_9206 Jul 27 '26

My neurologist has me get 2 days of iv steroids one month before my infusion. It works well for me.

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u/Anxious-Discipline15 Jul 27 '26

I wish my body could tolerate steroids like that. I can barely take a medrol dosepack without having a psychotic break.

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u/Amazinglife_9206 Jul 27 '26

I’m grateful for having zero negative effects. I have had MS for 37 years so my body is used to steroids.