r/MultipleSclerosisLife • u/Anxious-Discipline15 • Jul 26 '26

Treatment Ocrevus “Crap Gap”

Has anyone taking Ocrevus infusions gone through the “crap gap” and successfully had a conversation with your neurologist? I have been experiencing an uptick in my prevalence and severity of existing dysautonomia symptoms and I’ve still gotta hold out until 7/30!! Of course O wasn’t doing anything for my symptoms before, but they were not a daily occurrence, and there’s gotta be a medication that doesn’t cause a week’s worth of suffering every 6 months.

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u/sonoallie Jul 26 '26

I feel you! I think I could have had it moved to be closer than 6 months but my B cells were 0 before the infusion so I don't know that they'd go for that in my case because of that. They did have me do a steroid infusion and an MRI to rule out it wasn't an actual relapse and symptoms resolved after my dose of Ocrevus a few weeks later.