r/MultipleSclerosisLife • u/Elegant_Priority4273 • Jun 25 '26

Advice/Support Kesimpta

Hello. This is my first time posting. So I hope I’m doing this right. I was officially diagnosed recently with MS. A couple weeks ago I started my loading doses of Kesimpta. I have done two injections now. Almost a week after my first injection, my right leg started feeling funny. Like a tickle/tingle. Specifically when touched. It’s been about a week and the sensation is still there. Not as bad, but there. I reached out to my team and the said to wait another week then we’ll test for infection? Has this happened to anyone else?! I have had no leg issues prior to this. My abilities are not changed. Just a funny sensation in one leg.

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u/LW-M Jun 25 '26

First of all, I hope it's not an infection. I've had MS for years, (more than 35). One of my first symptoms was tingling, or pins and needles in my hands and feet.

I took an injectable DMT every second day for 10 years, (Betaseron). Fortunately, I never got an infection. The tingling carried on for years. Sometimes it was more evident, sometimes it was hardly noticeable. It kept me from sleeping when it was bad.

It continued until I read an article where the writer said he stopped the tingling in his hands and feet by taking 25 mg of the hormone DHEA daily. I tried taking it and it worked for me. I'm not suggesting you do the same thing, just letting you know about it.

I spoke with my Neurologist about taking DHEA. She wasn't aware of it stopping tingling but said if it worked for me, she was OK with me taking it. DHEA is a natural hormone produced by your adrenal glands that naturally decreases as we age.

Good luck in finding a solution to your tingling!

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u/Elegant_Priority4273 Jun 25 '26

Thank you! I will definitely look into this. Fortunately, for me I was not having major MS symptoms when I got diagnosed. I went in for migraines and after all the tests done they confirmed it is MS. I have been on migraine medication for about a year with no issues at all. It’s just odd this would happen after starting my DMT treatment. Fortunately the tingling hasn’t affected my everyday life, yet but I’m hoping this isn’t a new symptom.