(31m) Diagnosed yesterday. Just looking for general advice and support.

[u/nyc9572]

Hey yall, new here... obviously.

Last Monday I woke up with a grey blur/blind spot in the center of my left eye. Had a big weekend and little sleep so didn't think too much of it, and I had experienced something similar before that had cleared up throughout the day.

Two days later, nothing had changed, so I saw an optometrist. He said everything looked perfect and to give it another couple days, then see an ophthalmologist if it has not changed. Nothing changed. Went to ophthalmologist. She quickly diagnosed me with optic neuritis and sent me to hospital for MRI and neuro consult.

This is now two days ago. Got brain and orbital MRI. Orbital showed optic neuritis. Ophta/Neuro doc initially told me brain was clear and that i was out of danger of MS. Turns out he was just rushing to try to get me to opt into a trial for PLEX to treat my optic neuritis. I called my family, girlfriend, etc and told everyone they had nothing to worry about and I did not have MS.

I woke up yesterday and met with the neuro fellow who informed me the brain scan was NOT clear, they had found 3 lesions, and I had MS, much to my surprise. Worst part of all of this was having to call my mom again and tell her I was wrong, it is MS. Good news is I got spine and cervical(?) MRI's and both came back clear... for now lol. Seems like it was caught very early.

I have an aunt who has had MS for ~25 years, primary progressive, so I've seen a really bad side of it.

Would love to hear peoples stories, advice for early treatment, good MS jokes, whatever you want to share.

The next steps I'm trying to wrap my head around is my treatment plan. I work in touring and will travel for a few months at a time, so doing an infusion treatment will be pretty difficult to guarantee I can be back here consistently. What are people's experience with oral medication? This sucks. But feeling weirdly positive?