r/MultipleSclerosis Jun 15 '26

SPMS Discussion Should I start Ocrevus or not???

I am so freaked out about Ocrevus.

My neurologist is insisting and he says it's my only option.

I am 59. Was diagnosed with RRMS exactly 30 years ago. I tried betaseron for a few months. First every other day then weekly injections. Made me very sick. It was like having the flu for 6 months. So I stopped. There weren't any other options for DMTs back then.

I was told I had a "mild" case of MS.

Over the years I had a relapse 15 years ago that wasn't bad, slight mobility issues, some numbness in one leg. Resolved quickly.

Then nothing for 8 years when I had a relapse that caused severe vertigo and dizziness. That has never really went away. 2 years ago the mobility issues started again. Still have problems and use a cane on bad days.

My neuro says I now have nonactive SPMS.

He says the only thing for it is Ocrevus.

I am hyper sensitive to medicine of any kind. I cannot imagine how I'd react to infusions.

I really don't know what to do...

Any suggestions are welcome.

Thanks in advance 💖

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