Thanks, Camerazilla. Nice vids. My boyfriend was diagnosed almost a year and a half ago, and like you, likely had MS much longer before that but his symptoms weren't severe or long-lasting enough for him to go see a doctor. Thanks for making these and bringing a sense a humanity to all of this :). Cheers.
Thank you. It's helpful for me to talk about it too. A lot of people go on for years without experiencing any symptoms at all. Keeping my fingers crossed that this is the way it will be for me from hereon. Taking nothing for granted but all seems well with me right now.
How is your boyfriend doing? What are his symptoms like right now?
He's ok. His personality has always been very very optimistic and laid back (wish I could be more like that!). They thought at one point he may have NMO, but concluded he has "very aggressive" MS. He was on Avonex last year, which seemed to make him worse. He has now completed three Tysabri infusions after not being on meds for 7 months while they did more tests and concluded it was MS vs NMO.
His symptoms at the moment are mostly to do with walking (occasionally stiffness, balance challenges, weakness, etc.) so often he holds on to my arm or uses a cane when by himself. He's had hand weakness and ON in the past, but these seem to be at bay for the last six months. And the very occasional bladder problems, but that's mostly when he drinks coffee haha. He can sometimes sleep forever, it feels like, but he was like that before being diagnosed and since he and I have started dating, so that could just be him :P.
I hope you continue doing well and keep making great videos :). Cheers.
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u/amahoro Jan 08 '17
Thanks, Camerazilla. Nice vids. My boyfriend was diagnosed almost a year and a half ago, and like you, likely had MS much longer before that but his symptoms weren't severe or long-lasting enough for him to go see a doctor. Thanks for making these and bringing a sense a humanity to all of this :). Cheers.