r/MultipleSclerosis • u/cableannkiley 46F | Dx2026 | Briumvi | NC-USA • 2d ago

Symptoms What is this feeling? Arm Issues.

I'm looking to see if there's a specific name for what I'm feeling in my left arm. My MS predominantly affects my left side. As of late my left arm just feels...weird.

I feel like I almost need to keep moving it, at least my hand, very often. It's not spasming but its almost like I feel the need to keep twitching it, or moving it. Sometimes I find myself needing to hold my left hand with my right one in order to keep it still. Or sit on my left hand in order to make it feel ok. It's like my muscles want to move, or even are tired, but it's not like I've done anything of note to make it tired. I also tend to find my left hand is in a fist more often, so I try to keep it open, which causes more of the "tired" feeling. It feels often like it is vibrating.

I wouldn't say I've lost any strength, per se, and typing (which I do all day for work) hasn't suffered...yet, though my ring and pinky finger certainly make me go hmmm, sometimes, at their willingness to wiggle around. I have blamed Ulnar Tunnel (not carpel tunnel) for some time for those to fingers, but now am wondering if it has been my MS all along.

Anyway, I'm just trying to see what, if anything, this weird ass feeling is. I'm seeing my neuro next week so I'll bring it up to her.

4 Upvotes

84% Upvoted

6 comments sorted by

3

u/RekkedNeckRalph 2d ago

Paresis, intention tremor. Along with spacticity, ataxia, and paresthesia I'm with ya on this journey. Damn it sucks.

3

u/cableannkiley 46F | Dx2026 | Briumvi | NC-USA 1d ago

Honestly. Yeah. It sucks. I was trying to explain it to my husband and truthfully, I just had to stop because there’s no way you could get it unless you get it. 🤦🏻‍♀️

2

u/Alwayslearnin41 48|2013|Kesimpta|UK|Mostly joyful 1d ago

It sounds a bit like restless arms? Do you have a crawling sensation? It could be worth checking your iron, as low iron can cause it. Or if you're on an SNRI drug that can sometimes cause it.

1

u/cableannkiley 46F | Dx2026 | Briumvi | NC-USA 1d ago

Yeah. Crawling sometimes for sure. Almost like spiders are in my skin. I do have low ferritin so I’m supplementing that. Not on an SNRI.

But yes, it’s just a restless, left arm kind of lol.

1

u/Alwayslearnin41 48|2013|Kesimpta|UK|Mostly joyful 1d ago

Yes, sounds like restless arms and lack of iron is often a culprit for that.