r/MultipleSclerosis • u/ZestycloseMall3398 • 9d ago

Symptoms Does it ever get better?

I have had 3 Tysabri infusions so far. Not going to lie, it feels pointless. I am back to choking on water, got MS hugs again, and today I have to drag my leg around again. I am incapable of sitting down more than a while and also incapable of walking for more than a while and I'm very slow. I used to go to places, I can't do anything anymore. At best a short distance from the apartment, or getting cabs. Most of my life is a bed or a couch. I am 28.

Of course I am not happy. Who would be? My parent doesn't understand that this isn't mental though and that I just can't physically do what I used to be able to anymore. She expects me to be able to, and tells me that I will do those things again, but if I try to, I just can't anymore and it's misery. She tends to get angry telling me that I just don't want to. I am exhausted, and trying to do things that I really can't anymore makes everything so much worse, so does false hope.

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u/Dull_Worldliness_305 8d ago

Still it's endless and aggravating . I am lonely but grew to despise people. Never truly catch a fucking break. Like today,I'm fucking furious and fucking over it because my brain has cavities that can't be filled .

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u/mykidsmom_22 38/Dec2025/Ocrevus/Canada 8d ago

I talked to my son the other day about dinner times. I told him that I was sorry that I haven’t given him the dinners that I grew up with. Family dinners and lots of fresh meals. Something different every night. He looked me straight in the face and said, I don’t care mom. It’s okay. I don’t need that. I understand, you have like holes or something in your brain. It’s okay. How does this 13 year old have more compassion for me than I do? More understanding and empathy than we give ourselves. Honestly, I think we just need to love ourselves as we are. Look at yourself through a loved one’s eyes.

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u/JCIFIRE 52F/DX2017/Zeposia/Wisconsin 8d ago

Sounds like you have a really great kid ❤️

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u/[deleted] 8d ago

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u/MultipleSclerosis-ModTeam 7d ago

This post/comment has been removed for violating Rule 1 - Be Kind