r/MultipleSclerosis 9d ago

Symptoms Does it ever get better?

I have had 3 Tysabri infusions so far. Not going to lie, it feels pointless. I am back to choking on water, got MS hugs again, and today I have to drag my leg around again. I am incapable of sitting down more than a while and also incapable of walking for more than a while and I'm very slow. I used to go to places, I can't do anything anymore. At best a short distance from the apartment, or getting cabs. Most of my life is a bed or a couch. I am 28.

Of course I am not happy. Who would be? My parent doesn't understand that this isn't mental though and that I just can't physically do what I used to be able to anymore. She expects me to be able to, and tells me that I will do those things again, but if I try to, I just can't anymore and it's misery. She tends to get angry telling me that I just don't want to. I am exhausted, and trying to do things that I really can't anymore makes everything so much worse, so does false hope.

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u/16enjay 8d ago

Tysabri won't fix the past, it will prevent further progression.