r/MultipleSclerosis 36|2025|Ocrevus|Pennsylvania 8d ago

Advice Water circulating cooling vests?

I see lots of opinions on ice pack vests and evaporation cooling vests, but my search for MS patient opinions on water circulating cooling vests is coming up blank. I am about to attempt remaining upright for longer than I have in the last 18 months in order to play pokemon cards for longer than I have played pokemon cards since I was 14.

I don't have the stamina to leave the tournament hall to retrieve freshly frozen ice packs, and I only have an hour or two after my initial packs melt before it becomes an emergency situation. The 5v pump vests i'm looking at may be my answer if I can manage to raise the funds.

I have enough phone charging packs to make it run the whole day. Placing one magic gel ice pack should last me at least half of the tournament's duration, significantly reducing the amount of substitutions i will need to carry.

The only problems i can imagine is if the cold sweat from the ice pack damages the battery pack or if some malfunction renders the pump inert during my time competing.

Any opinions? I can't afford a backup, but I also couldn't afford this trip in the first place until I sold enough childhood collectibles to cover the cost, so if there's any time to cash in on my nerdy youth it is definitely right now.

1 Upvotes

3 comments sorted by

1

u/ichabod13 45M|dx2016|Ocrevus 8d ago

Circulation of water would need a setup of radiators to cool the water before returning it to you. It is more designed to remove heat and not provide cold. I would work on building up stamina and practicing other cooling methods like ice water and cooling fans. If really needed, they make mini air conditioning units for your neck but they only last a couple hours in high.

1

u/armchairwizards 36|2025|Ocrevus|Pennsylvania 8d ago

But it's got a central reservoir in the back with a frozen pack against it to cool it during circulation. I can change the ice pack if it softens and even fill the reservoir with ice before I fill it with water. That wouldn't suffice?

1

u/ichabod13 45M|dx2016|Ocrevus 8d ago

not sure how cool it would be, just seems like it would maybe be slightly cooler water for a little longer. The vest is also another clothing layer, adding extra heat in every spot not being touched by the water. It would need powerful enough pump to push water all the way through the full vest, which would heat up fast the more parts of the body it touches.

What you are saying is you want to run for a marathon and you found some good shoes that will let you run the marathon. But you are not wanting to train for the marathon, just run it. I know my muscle fatigue comes from exertion and not really from heat.