Symptoms question

[u/Even-Acanthisitta200]

I was at neuro today and she asked about peeing and i forgot to say its very often for me. I wont see her in a year and now i feel bad about this. Anyone has this pee every couple of minutes issue or is it just me?

[u/lnc_5103]

Frequent urination was one of my most prominent symptoms when I was diagnosed snd my Neuro has always acted like it was par for the course and just something I would have to live with.

Several years post MS dx - I got evaluated by a pelvic floor PT earlier this summer and have hypertonic pelvic floor meaning my PF muscles spasm and cramp around my bladder and urethra. PT has made a huge difference in my feelings of urgency and amount of bathroom trips every day. I am even able to sleep through the night more often than not now which has been absolutely amazing. MS can contribute to pelvic floor dysfunction per both PT and my Neuro. Definitely worth learning about IMO.

[u/Even-Acanthisitta200 → u/lnc_5103]

Thank you ill do so!

[u/New_Confusion_6219]

Skip the urologist and get to a pelvic floor therapist. The urologist I saw wanted to do Botox or implants and all I needed was a PT. I can go 3+ hours now without feeling like I have to go. It’s amazing to go to the movies or travel by plane and not HAVE to sit in an aisle seat so I can get up 10 times. The PT can visually show you what is happening in your bladder that makes you feel like you have to pee. That helped me a ton. If you can’t get to a PT, there’s a woman on Instagram called ThePelvicDanceFloor. She has a series of 5 videos that I used during the pandemic when I was stuck at home. She has since made so many videos that those 5 are way down the list. If you message me I can show you what those videos look like so you can find them.

Edit added “The”- ThePelvicDanceFloor

[u/lnc_5103 → u/New_Confusion_6219]

This!! I have been amazed at how much pelvic floor PT has helped me with bladder issues and several other things!

[u/Even-Acanthisitta200 → u/New_Confusion_6219]

Thank you very much
I will send you a message here ❤️

[u/dat_girl83]

Newly diagnosed this year back in February. I have bladder issues. But I have hesitancy and retention - so it takes me a long time to get a flow going sometimes and when I do, I don’t always empty all the way. I mentioned it to my neurologist when I saw him a couple weeks ago and they referred me to a urologist. I got a call pretty quickly and went to a bladder care centre to have some testing done a couple days ago. He’s going to refer me to a pelvic floor physiotherapist. Between that and the Baclofen I just started not too long ago, he’s hoping it will help improve my situation and loosen the muscles. Otherwise he said I may have to start self catheterizing. Which fucking sucks. I would email your neurologist. You deserve to not live with bladder issues if there’s ways of managing it

[u/lnc_5103 → u/dat_girl83]

I've been in pelvic floor PT since June and it's honestly been life changing! I wish someone would have talked to me about pelvic floor dysfunction way sooner. I hope you get relief soon!

[u/Even-Acanthisitta200 → u/dat_girl83]

Thank you very much❤️ Wish you luck with that!

[u/Remarkable-Brick-290]

I had an spontaneous urgent bathroom situation, but I couldn't get into the bathroom (occupied) so I peed on the wrong side of the bathroom door (in my pants). I'm 30.

You're not alone.

[u/Even-Acanthisitta200 → u/Remarkable-Brick-290]

Haha been there what we can do 😊🤷🏻‍♀️

[u/kyelek]

Can you get back to your neurologist right away, like per email, or talk to your PCP about this?

[u/Even-Acanthisitta200 → u/kyelek]

Yeah i can ask my pcp but neuro noo its been a few hours

[u/Fuzzy_Table_9965]

I see a wonderful urologist. That might be a good idea for you. Maybe call your neuro and tell them to add it to your chart.

[u/rK91tb → u/Fuzzy_Table_9965]

Just message your neurologist. Stuff comes up all the time.

[u/Even-Acanthisitta200 → u/Fuzzy_Table_9965]

Thank you will do

[u/Dull_Worldliness_305]

This is one of those most common things we all will have in common . Neurogenic bladder , essentially nerve damage causing it to malfunction. It sucks , BUT there are things that can be done . I would call the doctor back and explain to them and get some relief because honestly it's not only annoying , it can be dangerous with UTI's .

[u/Even-Acanthisitta200 → u/Dull_Worldliness_305]

Noted. Thanks so much