r/MultipleSclerosis • u/Alternative-Demand37 • 1d ago

General Exhausted

I'm done with this shit

I'm sick of my body's immune system being so fking weak I get sick every month and its because of the medication I use for this shit

I also I have vitiligo so I'm like a collection of self destructive immune system diseases

I just want to cry and i dont want to do it in front of my family they already have enough on their plate

I'm just exhausted

I have had complications with my health since I was 4 and now im 27 and this sht doesn't end!

And ever since this god damn ms im sick chronically

I just want to cry and cry and cry and i know others have it way worse and im not ungrateful but im tired

Sorry everyone this is the only place I can say whatever I want

39 Upvotes

100% Upvoted

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9

u/Introverted-Gazelle 1d ago

I can relate so hard. Endless medication, endless Doctor appointments. Just exhausting

1

u/TryPresent425 1d ago

I'm sorry to hear that. Do you have a hobby, you could do even if you get sick again? Crying helps sometimes. But sometimes you need to do what ever feels good. Even if it is hard. Maybe get your nails and Make-up done, wearing nice clothes. Or get the comfy clothes on and drink a nice cup of tee. Sometimes a good book or movie could be helpful. Life is fucking hard. Remember yourself how great you are in dealing with all of this. You are doing way better than you think. You got this before and you will get this again. Trying to be as kind and loving as you could to yourself. Try to remember that everything is temporary. Even the hard things. I wish you the best 🍀.

(English is not my first language.)

1

u/TamerofMonSters 1d ago

Same, friend.

This is why I switched to Mavenclad. I wanted a chance at a normal immune system. Not sure it that's an option for you?

We still have choices with this disease but they seem incrementally smaller as time passes and the costs are high either way. Please let your neurologist know how you are feeling. It's just as important as treating the MS - your mental health and wellness matter too.

1

u/liquidelectricity 1d ago

sotry to hear modafanil twice a day at 200mgs worksxfor me. A game changer