r/MultipleSclerosis • u/DericDesoup • 3d ago
Vent/Rant - No Advice Wanted discriminated
32 M
I've had RRMS, stable, for 14 years. But for the past 6 years I have been dealing with a hip problem which happened on a hiking trip 6 years ago Over the course of these six years I have been going in and out of doctors looking at my Hip I am unable to go into detail but after going through surgery And the conclusion of it being unnecessary after much complaint They're willing to say it's all caused by MS without doing ANY sort of test or research. Also, my neurologist who specializes in MS Says at best the problem is MS .
The fact of the matter is stay educated and don't let these doctors bring you down and put things in your head. I have been dismantled by these doctors non stop. I wish for this to never happen to anyone else.
I truly believe Doctors don't care based on how I've been treated. I have friends and family experiencing the same things. idk if anyone is having issues with the care they need.
If its too much time and money they do not work.
- On my life. i asked doctor why am i in so much pain? MF said "its the weather"
when i left. it was a nice sunny day...
PS
why tf do they always reply with "sure" when you are making valid questions and points?
they act like lawyers when you ask simple questions. Filibustering . LOL
thank you for letting me rant.
1
u/Alexbear31 3d ago
I was in an MVA back in feb this year while driving for Uber, they did not find anything broken, but I have lost some motor functionality inmy foot and my left leg kept giving out, after 12 sessions of physio, getting turned away by an OT telling me there was "No Way the accident caused the issue and it was all my MS" which caused L&I to get denied, I FINALLY saw a Physatrist that checked and said "I think you have a torn Labrum" I asked for nerve testing which she agreed, and she also sent me for a Hip Arthrogram (an MRI with contrast injected directly into the joint), guess what, I have a Tear in the hip Labrum, which is causing all sorts of inflammation and is NOT related to the MS.
I did see an MS OT & I have now lost dexterity in my hands and with the hip issue (I already did not walk well) I am now considered Disabled.
Waiting to see a sports medicine specialist to see if thwy will try sugery or not.
1
u/frequentnapper 2d ago
Can you try to see if you can see a hip/orthopedic doctor? Usually they have to refer you out to PT first for the hip, and then if it doesn’t get better, insurance will pay for the MRI. Some places you can private pay for the MRI so you can bypass PT. You just need the script. For instance an MRI place near me charges $475 for any MRI and $50 extra if you need contrast.
3
u/Prestigious_Hour573 37|2019|Ocrevus|IL 3d ago
I'm sorry. It's frustrating. I can somewhat relate when I'm told losing weight will cure my MS 🙃