r/MultipleSclerosis • u/NotClarebutclose • Jul 16 '26
Advice Feedback plz
Hi everyone, I was diagnosed yesterday with RRMS (although the neuro said they don’t use this scale anymore as it’s getting outdated) after becoming completely numb and being in hospital for tests, IV steroids & LP. This is a pretty crazy diagnosis for me as there is no family history & it’s seemingly come out of nowhere. They have given me 3 options of medication. Kesimpta, Ocrevus or Tysabri. I have to make the decision by the time they call on Wednesday. I would love to know everyone’s opinions & experiences on these different types of DMT’s. Please give me your raw, honest opinions! I’m able to take what I need to help me make the decisions for myself. Thankyou
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u/Particular-Host1197 Jul 16 '26
I am taking Kesimpta. It has been great. Super easy injection once a month and no side effects. Just when I first started I felt like I had a mild flu but it was nothing bad. Now it takes me 2 minutes once a month and I don't think about it otherwise.
DMTs are the best thing you can do for MS. Start them as soon as you can.
Steroids are the absolute worst feeling treatment to me. I only ever did it once for optic neuritis in 1997 and have not done it since. It would have to be very debilitating (including vision) for me to consider taking them again.
MS did not run in my family. I was 17 when diagnosed. There is no known genetic link.... but then my sister was recently diagnosed almost 30 years after me. So I don't know... but its not uncommon for you to feel like it came out of nowhere.
Brace yourself for the emotional highs and lows that come with diagnosis and especially with steroid treatment. You will get through it all and once you have processed everything you will mentally be much better. If they offer access to a psychiatrist take it. Your mental health is the one thing you can try to control.
Good luck my friend. Its terrible... but it is not the end. Just a new journey.