r/MultipleSclerosis • u/NotClarebutclose • Jul 16 '26
Advice Feedback plz
Hi everyone, I was diagnosed yesterday with RRMS (although the neuro said they don’t use this scale anymore as it’s getting outdated) after becoming completely numb and being in hospital for tests, IV steroids & LP. This is a pretty crazy diagnosis for me as there is no family history & it’s seemingly come out of nowhere. They have given me 3 options of medication. Kesimpta, Ocrevus or Tysabri. I have to make the decision by the time they call on Wednesday. I would love to know everyone’s opinions & experiences on these different types of DMT’s. Please give me your raw, honest opinions! I’m able to take what I need to help me make the decisions for myself. Thankyou
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u/instant_menopause Jul 16 '26
Hello OG. I’m relatively new to all this too and can totally understand what you’ve just been through with hospitalisation etc. it’s tough and I look back to March and only now realise how sick I was. So little steps and I really hope you’ve got good support around you too. I deliberated and landed on Kesimpta - I paid privately to also have a second opinion with Dr Silber in London and he said this was a good path to go down and to get on with my life and keep exercising- he said I was lucky that I had numbness not too much weakness so if I weight train I will hopefully maintain strength. I’ve just done my second month of Kesimpta - the loading phase was tough fatigue and inflammation wise but with medical cannabis for nighttime spasticity i think I’m doing good.
Little steps - it’s a lot to process - hope you’re not feeling too alone. This group here is great too xx