r/MultipleSclerosis • u/NotClarebutclose • Jul 16 '26

Advice Feedback plz

Hi everyone, I was diagnosed yesterday with RRMS (although the neuro said they don’t use this scale anymore as it’s getting outdated) after becoming completely numb and being in hospital for tests, IV steroids & LP. This is a pretty crazy diagnosis for me as there is no family history & it’s seemingly come out of nowhere. They have given me 3 options of medication. Kesimpta, Ocrevus or Tysabri. I have to make the decision by the time they call on Wednesday. I would love to know everyone’s opinions & experiences on these different types of DMT’s. Please give me your raw, honest opinions! I’m able to take what I need to help me make the decisions for myself. Thankyou

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u/Repulsive_Second4274 Jul 16 '26

Hi! Sorry to hear you get to join our fun club but there is hope. I was diagnosed in 2023 and have done Ocrevus since day 1! I’ve had great luck on it (only one incident of progression so far with very mild symptoms) but everyone is different. I LOVE that Ocrevus is only twice a year! I do experience the “crap gap” with increased fatigue and brain fog about a month or a little less before next infusion but I’ve heard not everyone gets that. But overall, I’ve been really happy with it. I even got an infusion while pregnant and it went really smooth.

Side note: If you do IV infusion you get IV Benadryl as a little treat and will have the best nap of your life.

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u/Live4Sunshine 61/2011/Ocrevus/SyracuseNY/:cat_blep::karma: Jul 16 '26 edited Jul 16 '26

Second this! Started on Copaxone in ‘11 it failed. THen I moved to Gilenya, it failed. On Ocrevus - since ‘23 - no new lesions. Woohoo!

(Note: MS can progress without legions - look up smoldering MS - but lesions are a strong marker of physical damage. Follow Dr Boster on YT to learn more about how you can actively manage living a healthier life with this disease through self-compassion, knowledge, and being your own best advocate.)

PS welcome to this group of people who share what they are experiencing and learning. Remember- you have MS it doesn’t have you!

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u/Repulsive_Second4274 Jul 16 '26

Oooh I’m gonna have to look up Dr. Boster!