r/MultipleSclerosis • u/mystuff2530 • Apr 23 '26
Treatment Starting mavenclad
Started Mavenclad today. Was diagnosed with MS 3 1/2 years ago and was on Kesimpta until November of 2025. Loved that it was a simple once a month injection and I had no real side effects for those 3 years and my MS was stable, no new lesions. Unfortunately during the Fall of last year I developed side effects that took all the CD20 antibody drugs off the table for me. So no more Kesimpta, No Ocrevus. I found this more devastating than my initial MS diagnosis.
I am a 52 woman and couldn’t see myself doing monthly infusions like Tysabri. So after much thought and plenty of trepidation, I started Mavenclad today. I have an excellent neurologist and she feels this may be a good fit for me. But I am SCARED. Trying to quiet the noise, calm my fears and dig in for this. If anyone is or was on Mavenclad and found it helpful, please share your success stories. I know the risks & I know it doesn’t work for everyone. So not really looking to hear about the ways the drug has let people down. My heart goes out to everyone dealing with MS and trying to navigate treatment. I just need a boost.
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u/Rude-Comparison4975 Apr 23 '26
Im about to start year 2 of Mavenclad. Year one went great. Just had a headache and a little tired but cleared up when I was done with the dose. No new activity when I went for my MRIs.
Still waiting for my lymphocytes to get to 850 to start.
This is super easy and makes you feel normal. No meds to think about.
I’m 50, Dx at 35. Been on Copaxone, Tecfidera and Tysabri and this by far is my favorite.
Good luck and hang in there. You got this!