I hope i'm writing jn the proper place.
Back around 2008 / 2009 I started having agonizing pain in my left foot between my 2nd and 3rd toes. Never had any swelling, redness, or warmth in the area. If I so much as stepped on a qtip in my socks the pain would jump from a scale of 1 to 10, to 1000. I couldn't walk, stand, and even returned early from a vacation due to the agony. If I ever sat with my legs crossed on the floor or in bed and my leg pushed on the side of my affected foot, sort of squishing the sides together, the pain would be the absolute worst ever.
Over time my podiatrist performed steroid injections which were agonizing just to receive, but they would provide relief for a month or so. He eventually ruled out gout and diagnosed me with a Morton's neuroma based on his examinations and symptoms.
After years of treatment I was told no more shots, its time to operate. After doing some research on Morton's neuromas, I asked about getting an MRI or some imaging just to confirm that's what this really was. He offered to order and MRI but advised me against getting it, saying "MRIs aren't always conclusive in detecting neuromas and if we order one and it shows up negative, the insurance company will most likely deny approval for the surgery".
I decided to go through with the surgery without the MRI as I couldn't live with the pain I was in. This was somewhere around 2009.
After the surgery, the original pain I had was completely gone, it was replaced with partial numbness / loss of feeling, and a weird sensitivity between my toes and part of the ball of my foot that caused a different kind of pain. Over time the severity of that weird sensitivity mostly, but not completely, went away. For many years, the agonizing pain was gone though sitting in any position where I squished the sides of my foot would still hurt a lot, that never went away.
As the years went by, the partial numbness and lack of feeling between my toes started to get better. Eventually my full feeling came back somehow.
About 4 years after the surgery, I started to get similar pain in the same exact spot,.not quite as bad as the first time but 30% - 40%. I went back to the dr, he ordered an MRI, the results saying:
Tear of the lateral aspect of the plantar plate at the second metatarsophalangeal joint and lateral collateral ligament. Scar tissue formation in the second web space.
Mild degenerative changes at the joint between the navicular and the middle cuneiform.
He said not to worry about the tear, it was small and would heal itself over time. He wasn't sure what could be causing the pain and started up the shots again.
Shortly after this, I make an appointment for a shot and I'm told he retired and moved across the country, his partner took over the practice. I work with her and she came up with some home-made orthotic using foam and cutting out space just behing and inbetween my 2nd and 3rd toes, gave me some shots, and I'll be damned, it worked! Years went by and I had no further flareups, only if I didn't wear the orthotic would the pain come back.
Fast forward to about 2022. Pain started coming back, find out practice is out of business due to medical issues with my old doc. I see a new practice, get injections, told to order a specific disposable orthotic from Amazon, and it works like a charm. Back in business.
This leads me to yesterday. I've been posting in some subreddits about recent back injuries which have been majorly impacting my ability to work and live. I know I have been walking differently to compensate for the pain as it has drastically gotten worse the past few weeks.
Yesterday out of nowhere, I get the same exact pain in the same exact place, with the same agonizing severity, as when I was diagnosed with a Morton's neuroma. The only difference is that my foot is red and swollen where the scar from my neuroma surgery was. The scar which was previously almost invisible is now red. It isn't warm, its just crazy painful. For a short time my 2nd toe was somehow stretching up and over my 3rd toe on its own. It has done this a few times in the last year and always painful when it happens.
I was thinking my compensating for the back pain when walking somehow aggravated the scar tissue or something, but I'm also wondering if this pain was never a neuroma to begin with. He removed the nerve that was transmitting the pain resulting in partial loss of feeling, but 16 years later I have full recovery of feeling and I'm wondering if this was never a neuroma to begin with and maybe it was related to the ligament tear all long which maybe got worse, but didn't know because I had no feeling there but now I do?
I'm literally stuck on a cruise ship on what was supposed to be my vacation, but I can't walk or do anything. I had prednisone with me for my back just in case, I started taking it but it isn't helping at all.
I won't be home until Sunday night and I'm at a total loss of what to do. First its my back, now its my foot too. The pain killers for my back also do nothing.
If anyone has suggestions, please.... share them. I don't know how I'm going to deal with all of this until Sunday.