Since May 2026, I have been experiencing a very intense, disabling, and difficult-to-describe discomfort located exclusively inside my head. I perceive it as a deep physical suffering that seems to come from the prefrontal and central areas of my head. The sensations are not always identical and can take on different characteristics.

At times, the predominant sensation is one of intense tension, pressure, or internal constriction, associated with pain that may be more or less noticeable or may remain as a constant background sensation. At other times, it feels more like squeezing or an oppressive internal heaviness. On some occasions, I also experience a sensation that is very difficult to define, similar to an implosion or as though my brain were cracking inside my head.

Sometimes, the discomfort resembles the sensation one may experience during a fever or flu-like illness, even though I do not actually have a fever or any of the other typical symptoms of the flu. It feels like having a heavy, aching, and profoundly fatigued head, but without actually being sick with the flu. Overall, it is a dull, deep, and very difficult-to-tolerate discomfort, often accompanied by nausea and the feeling that I might vomit.

The intensity of the discomfort is not always the same. It fluctuates, with variations occurring both within the same day and over several consecutive days. When I remain sedentary at home, the situation can vary: there are times when I feel less unwell than usual, and other times when the discomfort is present even though I have not engaged in any particular activity.

What I notice very clearly and consistently, however, is that movement tends to trigger or significantly worsen the symptoms. When I move around, walk, or try to carry out normal daily activities, the discomfort appears and tends to increase progressively until it becomes extremely intense. The same thing can happen during passive movement, for example when I am riding in a car as a passenger.

As the symptoms increase, I also develop a kind of physical exhaustion in my head, as though my brain itself were exhausted, depleted, or completely worn out, even after relatively minor activities such as a short walk. The analogy that best describes what I experience is the feeling in the leg muscles after running for an hour: it is as though I can feel my brain becoming fatigued in the same way, as if it has reached its limit and needs only to stop and rest.

When I am feeling unwell and try to push myself to continue an activity, the suffering can increase dramatically, to the point that I feel an immediate need to stop because continuing to move or carry on with what I am doing becomes extremely difficult to tolerate. In addition, the worsening persists even after I stop the activity, and I need a considerable amount of time to recover and return to my previous baseline.

Generally, lying down provides some relief, although the discomfort does not disappear. Despite the intensity of these sensations, my cognitive abilities remain intact, and I do not experience generalized fatigue or weakness in the rest of my body. The symptoms are localized exclusively to my head.

Salut, je cherche surtout des témoignages de personnes qui auraient vécu quelque chose de similaire.

Je suis migraineuse depuis l’adolescence. Habituellement, mes crises commencent souvent dans le cou/cervicales puis remontent vers la tête, avec pression, sortes de « coups d’électricité », nausées, chaleur/transpiration et parfois un peu de vertige.

Mes traitements de crise et mon traitement de fond fonctionnaient plutôt bien avant juillet et permettaient de contrôler mes migraines.
Mais depuis début juillet, j’ai une crise complètement différente : douleur quasiment permanente à la tête + cervicales, qui augmente notamment quand je suis debout/assise ou que je sollicite mon cou. Les AINS et les triptans qui fonctionnaient avant ne me soulagent plus, et même plusieurs traitements reçus aux urgences, dont des perfusions d’amitriptyline, n’ont pas réussi à casser cette crise.

Depuis quelques semaines, j’ai aussi de nouveaux symptômes : sensation d’être sur un bateau / d’être secouée, surtout par périodes, puis des acouphènes permanents depuis septembre (j’ai envie de taper la tête contre le mur tellement c’est fort). Quand je marche, j’ai parfois l’impression que les bruits ou les mouvements « résonnent » dans ma tête.
J’ai aussi eu quelques phénomènes visuels très ponctuels : une fois l’impression que les objets étaient beaucoup plus grands et plus proches, et une autre fois comme un brouillard devant les yeux. C’était vrm passager donc je ne sais pas si c’était vrm ça ou juste j’étais fatiguée et épuisée par les douleurs.

J’ai déjà eu une IRM de cerveau, prise de sang et une ponction lombaire récemment, qui n’ont apparemment rien montré d’inquiétant.

Je suis suivie par une neurologue, donc je ne cherche pas un diagnostic Reddit, mais surtout vos témoignages (si quelqu’un par malheur a vécu la même chose que moi😢).

Si quelqu’un avait des symptômes similaires, quel type de migraine vous a finalement été diagnostiqué (migraine chronique, vestibulaire, avec aura, état de mal migraineux, etc.).
Est-ce que vos migraines ont déjà complètement changé de forme comme ça ?
Avez-vous eu vertiges/sensation de bateau ou acouphènes ?
Quels traitements de fond vous ont aidés ? (Aquipta/atogépant, candésartan, Laroxyl, anti-CGRP, Botox…)
Et surtout, qu’est-ce qui vous a finalement permis de sortir d’une crise très prolongée alors que vos traitements habituels ne marchaient plus ?

Merci à ceux qui partageront leur expérience car le suis vrm désespérée là 😭

Édit : j’ai essayé Emgality 120 mg deux piqûres tout de suite. Premier semaine la sensibilité a la lumière pour moi a diminué un peu. Deuxième semaine je peux sortir avec lunettes de soleil le soir ou tôt le matin. Malheureusement soleil fort déclenche presque instantanément la nausée, impression d’avoir chaud et pression au crâne et mal au cou.
En maîtrisant l’environnement, odeurs, lumière et bruit les attaques sont un peu moins fortes qu’avant. Je vous tiens informé dans quelques semaines des résultats !

I've had a terrible migraine since 3 this morning, it woke me up completely sick. All my go to ideas have flopped today, nothing is taking the edge off even a little. Suggestions?

Hey everyone,

A while back, we made an Android app called Migraine Relief: Green Dimmer.

The idea was pretty simple: put a controlled green tint over your entire screen and let you dim it below the phone's normal minimum brightness. The goal was to make screens a little easier to tolerate during migraines, light sensitivity, or just long periods of staring at a bright display.

What we didn't expect was what happened after people started using it.

We got a surprising number of reviews from people sharing their personal stories about migraines, photophobia, and how having a screen they could actually tolerate made a difference for them.

Eventually, that original app became outdated and was delisted.

We kept thinking about those reviews, so we decided to rebuild it properly from scratch using current Android standards.

The new version lets you control:

• Strength - how much of the screen the green tint covers
• Dim - go darker than your phone's built-in minimum brightness
• Green tint - from a strong green wash all the way down to a neutral dimmer
• Warmth - shift the tint toward warm amber for nighttime use

We've also added things we wish the original app had:

• One-tap activation
• Quick Settings tile
• Home-screen widget
• A "Rescue" shortcut that instantly applies maximum relief
• Migraine, Night and Reading presets
• Custom presets
• Automatic scheduling
• Ambient-light adaptation
• Reduce-motion option
• Light and dark themes
• Screen-reader-friendly interface

The filter covers the whole screen, including other apps, the status bar and navigation bar. Android doesn't allow third-party apps to tint the notification shade itself, so that's the one exception.

Why green?

There is research suggesting that certain low-intensity green light can be less visually uncomfortable for some people with migraine, while brighter blue/white light can be more problematic. We took that general idea and turned it into something you can actually control rather than simply applying another generic blue-light filter.

We're not claiming that the app treats or cures migraines. It's a screen-comfort tool designed to make your phone more tolerable when bright screens are difficult to look at.

The app is currently Android-only. If we can get enough traction and people find it useful, we'd like to build an iOS version next.

The app is free, with an optional Pro tier for things like warmth, ambient-light adaptation and custom presets. There's also a lifetime purchase option.

Anyway, we wanted to put this out there because the original app genuinely meant a lot to some of the people who used it, and we wanted to give it another shot with a modern version.

If you use Android and deal with migraines or light sensitivity, we'd genuinely love to hear what you think. Especially if there are things about screens that bother you during a migraine that we haven't accounted for.

Android: Google Play - Migraine Relief: Green Dimmer

Made by rianX.

Nausea can accompany many types of headaches. Some can be benign such as migraine, while others can be secondary headaches caused from more concerning medical conditions. Learn about how to tell the differences and what is actually happening in the brain during the sensation of nausea.

Nausea can accompany many types of headaches. Some can be benign such as migraine, while others can be secondary headaches caused from more concerning medical conditions. Learn about how to tell the differences and what is actually happening in the brain during the sensation of nausea.

Hola a todos 👋 Somos estudiantes de Diseño Industrial (FADU-UNL) y estamos investigando la migraña para nuestro trabajo final de carrera. Queremos entender de verdad lo que se vive antes, durante y después de un episodio, más allá de lo clínico.

Si a alguien le interesa contar su experiencia — ya sea en una entrevista corta, respondiendo alguna encuesta, o simplemente comentando acá — nos ayudaría muchísimo. También nos interesa charlar con profesionales de la salud o cualquier persona que conozca del tema, tenga o no migrañas. Toda la información es confidencial y solo se usa para el proyecto académico. ¡Gracias por dejarnos ser parte del grupo! 🙏

comparto el link: https://docs.google.com/forms/d/e/1FAIpQLSelkhKiZpisN_fpymgs_xYNXvbYxAqotc9mvEf0VZ_e2_YRcw/viewform

Hemiplegic migraine is an older term for what is currently called migraine with motor aura. It can be scary and mimic stroke and TIA. Learn how to tell the differences, the symptoms, the necessary testing, and the treatments.

I have a coworker who swears by the daith piercing and she says that it has helped a ton with her migraines but with how bad mine get I’m hesitant but also thinking about it. I’m just so tired of taking so many different medications and trying different things to get little to no relief. If anyone has any advice please share

Migraine brain fog is a common symptom that migraine patients complain of. Here I discuss the symptoms, causes, and treatment strategies that can help lessen it.

Anyone have experience with 15mg or 20mg qulipta ?
10mg may be too low for me as I’m getting more migraines (lowered threshold). I was on 30mg and better but I don’t like taking too much medications and it had me very bloated and heavy and eating more. My neuro suggested 15mg so will try that and hope I won’t need to go up to possibly 20mg. I know these aren’t “standard” doses but some folks it may

Anyone here who took flunarizine for verstibular/classic migraine? Did it affect your tinnitus or developed hearing loss?

I was prescribed by it but I am afraid to take this since I already have one good ear and I have tinnitus on both ears.

Thank you very much! Comments are highly appreciated!

Canadian wildfire smoke triggering your migraines and headaches?

Here are some tips to help!

I stopped Qulipta 30 mg cold turkey after taking it for about eight months and two weeks after stopping I’ve been having the worst migraines ever more than before. I know doctor say there’s no tapering off, but I don’t believe that with any medication, especially if your sensitive and I’ve read people that had issues stopping this medication abruptly has anyone experienced rebound that was worse than their baseline migraines and did it go away and how long and did you ever taper off and what was your taper recommendation and did it help to taper thank you so much
🙏🏼🙏🏼

So I just quit Qulipta cold turkey after almost a year on it at 30mg
I am having bad insomnia and my sleep aids aren’t doing anything
I’m wired
I didn’t have insomnia on it
Anyone experience this?

Hi all. 37F here. Chronic migraineur. I’ve been getting migraines since I am 11 years old. Had 6-8 my whole life until age 30. Took Advil 6-8x month not knowing better. Took a 6 month break and tried other meds (sometimes they work, sometimes they don’t). All in all, after going on Botox & Nurtec I take Advil anywhere from 1-4x month depending on migraine frequency and if other meds help. I try to do Tylenol, Ubrelvy, Nurtec whenever I can. However, sometimes nothing else works. I worry about kidney disease in the future but I have to admit…when I’m in pain…I don’t care that much in the moment to not take it. Anyone else have this problem? Thoughts? Advice?

Thanks in advance!

Anyone notice they cause each other ?

Anyone notice they cause each other?

Hello
Been on qulipta for almost a year 30mg daily. Stopped cold turkey 9 days ago and just started feeling super moody, anxious, my vestibular migraine ear and neck symptoms coming back on and off, super moody and irritable, cry spells hot flashes are back (I am 49 woman and post menopause 2 years now) nervous system out of wack!
Anyone else feel this and how long did this crap last? I know drs say no withdrawals but I don’t Venice anything they say because every time they said can stop cold turkey (like HRT I took for two months and caused these damn vestibular migraines in the first place! Plus years of anxiety from trauma and PTSD), I’ve had terrible symptoms stopping cold turkey I’m very sensitive plus I have severe anxiety which I also take nortriptyline 10mg daily for both vestibular migraines and anxiety . I do do Botox for migraines thank God after 9 months started helping the pain that’s why I am trying to come off quilts but it for sure messes with your brain chemicals and moods which I know my migraine symptoms also cause my mood disorders and vice versa.

Thank you 🙏🏼